Thanks, I'll be sending it right away. Mestinon helps with some of the general weakness but hasn't touched my throat.

Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....


I have had times where it feels like the back of my throat is touching the front..I had a few days about 6 months ago where my swallowing was so bad I just avoided eating and drinking much (smart I know).. but I felt like gagging as my throat felt like it was collapsing... At one point I tried to speak and it was like my throat was closed so no voice came out.. that only lasted a few hours.. thank goodness.. and now I'm almost back to normal as far as that aspect goes (i'm 1 week post IVIG)..

Yes, I have swallowed and then almost gotten sick as my throat was stuck- too dry to swallow.. they thought I may have sjogrens at some point. but dont' feel like that really fits

[QUOTE=bny806;956747]Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....

When I am really weak my face looks like one of those masks that represent the theater. But not the on that is smiling. And you are right, it is very upsetting.

Seishin,
I tried to answer your pm but I don't know if it went through. It told me there was an error. I may have done something wrong.

I didn't receive it so thanks for letting me know!
I forgot to add to the Timeline I had pain in the bottom of my feet for several months when walking, podiatrist couldn't see why.

I think that some pop-up blockers interfere with neurotalk's private message system. If you're having trouble with Chrome, try Internet Explorer.

Abby

If it's a new message, it'll say there's an error if there's not a title on the message, too. That happened to me yesterday.