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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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02-12-2013, 11:18 PM | #31 | |||
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Thanks, I'll be sending it right away. Mestinon helps with some of the general weakness but hasn't touched my throat.
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02-12-2013, 11:19 PM | #32 | ||
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Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....
I have had times where it feels like the back of my throat is touching the front..I had a few days about 6 months ago where my swallowing was so bad I just avoided eating and drinking much (smart I know).. but I felt like gagging as my throat felt like it was collapsing... At one point I tried to speak and it was like my throat was closed so no voice came out.. that only lasted a few hours.. thank goodness.. and now I'm almost back to normal as far as that aspect goes (i'm 1 week post IVIG).. Yes, I have swallowed and then almost gotten sick as my throat was stuck- too dry to swallow.. they thought I may have sjogrens at some point. but dont' feel like that really fits |
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02-12-2013, 11:24 PM | #33 | |||
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[QUOTE=bny806;956747]Yes, me too, as far as the appearance goes.. I'll look in the mirror and think, ah.. I look my age yay! and then hours later I look like an older grumpy person... At my worst symptoms I couldn't even smile.. I was so upset several months into this all that I wanted to cry.. and then just got more upset when my face wouldn't make the "crying face"....
When I am really weak my face looks like one of those masks that represent the theater. But not the on that is smiling. And you are right, it is very upsetting. |
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02-13-2013, 12:04 AM | #34 | |||
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"Thanks for this!" says: | seishin (02-13-2013) |
02-13-2013, 12:13 AM | #35 | |||
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Junior Member
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I didn't receive it so thanks for letting me know!
I forgot to add to the Timeline I had pain in the bottom of my feet for several months when walking, podiatrist couldn't see why. |
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02-13-2013, 08:37 AM | #36 | ||
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Senior Member
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Quote:
Abby |
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02-13-2013, 09:32 AM | #37 | |||
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Junior Member
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If it's a new message, it'll say there's an error if there's not a title on the message, too. That happened to me yesterday.
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