[gr8ful]

Some may have read my post about being happy to have learned I have a thymoma yesterday because a thymectomy could provide a means of eliminating my newly diagnosed MG. Well, pingpongman woke me up a bit and thanks to him for the reality check. In hindsight, tumors are probably never a really good thing.

I don't know if you all like reading the thought processes of newly diagnosed Myasthenics. To me, this is all real, honest and new. I'm watching myself as I go through this process. I don't like it. The uncertainty is pretty tough. I don't have many symptoms yet but I am surely scared of what may develop. Some have it pretty tough but I suppose you all can remember when symptoms were mild and the whole MG thing was new. I Hope you guys are OK with some doofy newbee posts. Someone has to be the new kid on the block.

[Anacrusis]

Originally Posted by gr8ful

Some may have read my post about being happy to have learned I have a thymoma yesterday because a thymectomy could provide a means of eliminating my newly diagnosed MG. Well, pingpongman woke me up a bit and thanks to him for the reality check. In hindsight, tumors are probably never a really good thing.

I don't know if you all like reading the thought processes of newly diagnosed Myasthenics. To me, this is all real, honest and new. I'm watching myself as I go through this process. I don't like it. The uncertainty is pretty tough. I don't have many symptoms yet but I am surely scared of what may develop. Some have it pretty tough but I suppose you all can remember when symptoms were mild and the whole MG thing was new. I Hope you guys are OK with some doofy newbee posts. Someone has to be the new kid on the block.

We can all choose what we do and don´t read. The beauty of writing on a forum in addition to private messaging is that the minute you think something is ´doofy´ then someone else out there reading has just learned something important from your question and someone else´s answer - People are happy to read stories and questions and happy to help with something that once was new to them too

Good Luck with the whole procedure

Post as much as you want!

When I had symptoms but no diagnosis I joined a whole lot of forums, and posted an awful lot of questions. After my diagnosis I wanted to know everything about MG, because I didn't feel like the stupid descriptions fitted. And when I asked my docs about some symptoms they said: that's not MG.
It's so uncertain, you have to wait and can't ask anyone because you don't know anyone with MG because it's rare.

(And, I too hoped I had a problem with my thymusgland, because I was also told that an operation is almost the same as a cure - it's not that weird)

So hail for forums: I learned a lot. It helped me a lot.
Don't be afraid, if you want to ask something or just spill it out, it's what we're here for.
Good luck anyway

[pingpongman]

For most it is a long tough journey. We all take a different path with different results. Having somewhere to go and learn, vent, chat or just read about our problems provides some of us with comfort. I accept my MG but that doesn't mean I have given up. I am old now but if I was in my prime trying to support my family it would be a completely different story.
I hope your journey is a good smooth one but if not we are here for you.
Mike

[Anacrusis]

Originally Posted by gr8ful

I'm watching myself as I go through this process.

I'm not really sure where my thought processes would be right now had I not stopped by here for part of my journey.....

[limpy]

When I first joined this board, my symptoms were not that serious, and I even questioned whether I even had mg or any other condition, since some days I felt totally fine. I must say now, that I am so thankful that I did join and read the experiences of others new and old, because it is those experiences that helped me to cope with the horror that I just endured in the Emory Hospital.
So no matter what you post, it can be beneficial to someone.

[Southern Bell]

I also want to welcome you to this wonderful chat room. I have found it to be full of helpful questions and experiences with MG.

I also had a very large thymoma. After experiencing a week of very strange symptoms I ended up at Emory Hospital. They performed a thymectomy but my symptoms only got worse. That was four years ago and I feel that I have been going down hill ever since.

It is interesting to read that "limpy" had a bad experience at Emory, because my experience was without question a completely horrible one. I always thought that Emory was the best hospital and it may be for basic illnesses, but not for something so rare as MG. I truly believe that Emory tried to kill me!

Keep reading and responding, you'll be pleased with the information you will gain.

Southern Bell