I can now:

• Wash my hair without my arms falling down

• Hold a cup of coffee without it turning to´concrete´ in 2 seconds

• Brush my own teeth and squeeze my own toothpaste

• Type more than one sentence without fatigue!

• Grasp an object with very firm grip

• Open jars, packets and envelopes

• Hold the weight of my own upper body and arms up

• Climb stairs without getting breathless & with thighs like rubber bands

• Kneel and do tasks on floor which involve prolonged use of neck muscles

• Speak later in the day without sounding like a drunk

• Speak without loosing my breath

• Chew without tongue fatigue

• Eat safely and manage secretions effortlessly!

• Drink and eat combined consistencies with normal speed and muscle coordination

• Go weeks without choking on my own spit

• Sit, speak, eat during meal times without one muscle set giving out

• Breath freely and without thinking about it

• See the horizon clearly on a daily basis

• Accomplish a 10 second task without taking rests in between to finish it

• Get through the day without diurnal fluctuations of energy/muscle weakness

• Manage heat without illness or exacerbation

• Engage in light exercise without it being harmful

• Feel appropriate strength in previously affected muscles (except deltoids)

• Predict how I will feel 2 days in advance

• Observe someone 50 years my senior and no longer feel that age

• Have a neuro appointment without detrimental effects to my physical wellbeing as a consequence

A short Mestinon trial did work as did ice pack on very light ptosis


But it wasn´t any psychotherapy, good attitude, diet, exercise program or medication that changed things.

It was as if somebody pulled the plug and it took 2 years for the dirty bathwater to empty out.

Recovery continued in slow motion as if from a serious myasthenic accident yet with spreading continuing on its own agenda
to other myasthenic muscle sets but in a lighter & gradually fading manner.


All is now quiet on the myasthenic front........


Thank you