Today was my hospital follow up visit with my neurologist. He is sending me to a specialist in Jacksonville who is supposed to have a lot of knowledge of the Myasthenic diseases. My appointment is March 1st. I am hoping to stay strong enough to stay out of the hospital between now and then. My swallowing and my neck strength have declined a little in the past few days, but not to the scary point yet.
He told me to just call his cell number and he would put me back in for another course of plasmapheresis , but I don't want to go there unless absolutely necessary.
I am hoping this new doctor has experience with 3,4 dap so I can try that and maybe get off the prednisone.

Glad you have an apt lined up with a specialist.. Stay well in the meantime... I remember before I had IVIG.. i felt my head was too heavy for my neck.. I had to tilt my head backwards to see well too..it's scary when you don't know how long you can make it! I pushed it too far the first time! Ill be sending you positive vibes .. I hear such great things about DAP .. I hope you can get your hands on some soon!