Done with the Neurologists. Nerve Conduction test & EMG negative so they say nothing could be wrong with me even though my condition is worse. They're trying to say it's all in my head. Did go to a Rheumatologist who said there's diffidently something wrong and it's not just in my head. He did a way more thorough exam, strength testing, asked more questions & actually listened to what I had to say. Also have been getting a tremor in my right thumb and hand, losing sense of smell & taste, slow gait & short shuffling steps, and small unreadable handwriting. From what I've looked up it sounds more like it could be Parkinson's than MG. In the meantime I back working as long as I can & hopefully get a diagnosis sometime soon.

I am so sorry you are going through this. Does your rheumatologist have any suggestions? Did you go to a neuro at a big teaching hospital?

so sorry
kathie

Seen a Neurologist at the Cleveland Clinic who told me since nothing showed up in my Nerve conduction test & EMG that there wasn't anything wrong with me and there was nothing else he could do for me. The Rheumatologist took me off my cholesterol medication, had me do more blood work and after a month he said he might have me get a muscle biopsy done. He and my PCP are the only ones that would take the time to listen to & believe what I had to tell them.

I'm still learning about MG and other neuro-muscular diseases. I think that what the doc said above is just plain cruel. It takes almost no time to 'google up' the fact that these diseases aren't fully diagnosable.

Why would a supposedly educated, compassionate doc make such a comment? Good luck to you slashman.

Maybe he had so many patients to see or didn't have the time to do the investigation work. They probably just want the patients they can easily diagnose. At least my Rheumatologist listens to me and seems like he really cares about finding what's wrong instead of treating me like another number.