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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-05-2013, 11:39 AM | #1 | |||
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Junior Member
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I have personally found that when i eat junk food mestinon does not work... i drag myself around for days until i start eating healthier.
and vitamin d3 helps me when that time of the month comes... it doesn't drain my energy like it used to! |
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"Thanks for this!" says: | Anacrusis (03-05-2013) |
03-05-2013, 03:41 PM | #2 | |||
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Member
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So I have been eating healthier. I take calcium with D3 and fish oil twice a day as well as a multi vitamin. My meat intake is drastically reduced due to MG chewing problems and I am eating fish 3-4 times a week because it is easier to chew. I eat 3-4 serving of soft fruit and 3 serving of the good veggies (carrots, broccoli, asparagus & brussel sprouts) every day. All my veggies have to be over cooked due to the MG. I cannot eat raw veggies & salads any longer. Carbs are almost entirely eliminated because I choke on them.
I found the choline article very interesting and have increased my eggs intake. I also found the link about manganese interesting and started eating pineapple everyday for that. I think my dark chocolate intake might already cover that. I cook a lot with ginger and cinnamon which are good for the anti-inflammatory. I am intrigued about the curcumin/tumeric anti-inflammatory effect but I do not think I could stomach it. I intend to start on a B complex since B1,2,6, and I think 5 are precusors of the ACh process and we already know about the b12 effect. I was also reading about CoQ10 and DHEA. DOes any one have any feedback or info on these with the MG/autoimmune disease? Is there an easy way to get these naturally in your diet. I am tired of taking so many pills. kathie |
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03-05-2013, 03:52 PM | #3 | ||
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Grand Magnate
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Kathie, Might I suggest only trying one thing at a time? Then if you react to something you've added, you'll know what that something is!
Also, a B-complex might not be the way to go. Some of them have too much B6, which is not good for CNS conditions. The best thing is to get nutrients from foods. You might not need to supplement for certain things. PLEASE discuss anything with your primary doctor before you try them! Annie |
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03-05-2013, 04:09 PM | #4 | |||
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Member
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Thanks Annie, but I have been on Fish oil and calcium with D for years. I much prefer to get my nutrients from food.
But since I cannot eat much meat any more and meat is the food rich in the B vitamins, I think I need a supplement. And I read hat you really cannot get too much B. I do not want to take any more supplements that is why I was asking what foods are rich in CoQ10 and DHEA. I don't think you can really over do it if you are getting those ingredients naturally from food. thanks kathie |
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03-05-2013, 04:14 PM | #5 | ||
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Grand Magnate
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http://www.drweil.com/drw/u/ART03367...Q10-CoQ10.html
Actually, it's B12 that you can't get too much of, unless you have a synthesizing problem in that pathway or with your liver. Do a separate post and ask Mrs. D if you don't believe me about the B6 and B complex. DHEA is a hormone made from the adrenal gland. Too much DHEA might increase your risk for certain cancers. Again, this is best discussed with a primary doctor, endocrinologist, gynecologist or hormone specialist. |
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