Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 03-05-2013, 03:51 PM #1
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
huntress huntress is offline
Member
 
Join Date: Jul 2012
Posts: 104
10 yr Member
Default 2nd opinion

Hi, I just wanted to ask about immune suppressants, see i'm currently taking 90mg of mestinon every 4 hours except for nights I take the mestinon timespan. my neuro wants to put me on immune suppressants but I don't want to even try them with the side effects. That scares me so much. Right now, I have symptoms every day. from vision, to generalized weakness and almost always my speech but some days i feel normal for a little while. I know I cannot work, still waiting for my ssi hearing actually. I have a family history of heart problems, my mom has had 3 heart attacks, my aunt died from a massive heart attack, 2 other aunts have also had heart attacks. my grandfather also died from heart failure and thats only on my moms side. dads side also has problems. theres also strokes from dads side. and another thing is, i finally am loosing weight..dropped 75lbs in the last year and a half. I know I have MG and struggle daily with symptoms but I am happy with my weight now. I read immune suppressants can make one gain. I dont want that. any one else had immune suppressants? How did it work out for u?

so now my neuro is sending me to another neuro for a second opinion...to lehey clinic, it's like ahhh!

Last edited by huntress; 03-05-2013 at 03:53 PM. Reason: forgot to add about the actual title. lol
huntress is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Get a second opinion? habster131 Parkinson's Disease 13 11-11-2011 04:02 AM
What is your opinion? Chemar Tourette Syndrome 1 08-22-2008 07:38 AM
Another opinion--now I have MG? eeyore2 Myasthenia Gravis 3 08-17-2008 07:09 PM
Do you have an opinion Thelma ALS 32 01-22-2008 08:50 AM
2nd opinion? flopper Epilepsy 3 08-04-2007 07:06 AM


All times are GMT -5. The time now is 07:49 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.