I had a really bad couple of months, mid-December through mid-February. I don't know why. Now for the last two or three weeks I've been steadily improving. I keep thinking it can't possibly be 4:30, because I'm not only still on my feet, but feeling strong. I think the clock must be wrong. But nope.

In January I couldn't get to the end of the street (500 ft.) and back. Now I walk around two blocks every evening. I was having daily collapse spells all that time, and I haven't had one now for a couple of weeks.

So, what made me better? I can't think of anything I'm doing differently. I have identified some triggers that give me bad days (too much activity the day before, female hormones) but not triggers that give me bad months. And I really cannot figure out what has given me this good spell.

Who has a clue for me? What can trigger a whole bad month? And what sorts of good triggers are there? Who would like to plumb these mysteries with me?

Abby

Should we assume you haven't started your "ingredientarian" lifestyle yet? If you had just made a change, I'm sure you would have associated your improvement with it.....

Is the temperature warming up where you live, to coincide with the improvement? Did you overdo it at Christmas and you're just now getting back to normal?

Ha! Nope, it's going to take me at least two months to psych myself up to ingredientarianism! Plus, I need my daughter home from college for moral support, and help with the cooking.

I just asked my husband, and he reminded me (I'm pretty thick) that both my neurologists told me that the larger dose of Imuran I started taking last fall could start kicking in...about now. I hadn't taken that very seriously because I got a big boost one month after I started taking that larger dose. The boost lasted a few weeks, and then I went down again. So I figured that I had already seen any improvement the drug would make.

It's so hard to tell if these ups and downs are related to the drug, or just the way MG behaves sometimes.

Abby

Thanks, actually that's a thought. My house was very cold this winter. By "very cold" I mean that on many days, I could see my breath everywhere but right next to the wood stove. And it has been warmer. Hmm. Thanks. I have never found a day-to-day correlation between temperature and weakness (either hot or cold), but maybe it contributes to week-to-week weakness.

Abby

Hi Abby,

This is very familiar: this happens to me twice a year, always takes 2 months (give or take a few days).
Did you get a flu shot?
I always have one, but it also triggers my immune system like crazy (which is not so weird, considering there's stuff in there to do that, so you can make that flu shot useful). 2 weeks after my flu shot, MG is much worse, my RA is flaring up like crazy and my thyroid gets attacked.

Or did you maybe have a virus or something?

I also have this worsening of the MG, without any obviouw cause. After a while it will get better. I stopped looking for the cause, because I can't figure it out, and just think it's part of the disease.

Good luck, and good news you're feeling better!

I would not change my diet, change my lifestyle, or anything if I were suddenly feeling better. I am very glad that you are doing well.

Just don't keep wearing the same socks MG game after MG game, like some baseball players do. Good one, Celeste.

Abby, Change can be hard to ascertain when it comes on slowly. Maybe you've been gradually getting better but didn't notice it right away. I have no idea why you're better but I'm glad you are.

Annie