Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 03-24-2017, 03:58 PM #11
kathrynw kathrynw is offline
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Default Coffee

I am new to this site. And I can see that these posts are about 4 years old. Very recently, I had an interesting event. I have not been a coffee drinker but recently started drinking coffee. I felt significantly better. I felt that I was getting more oxygen. Then I got worse where weakness is concerned. And my ankles became much weaker than usual, so bad I could barely walk. I had to stop drinking coffee. I looked on the Internet and found out that coffee is a bronchodilator, and on this site that it improves weakness with myasthenia gravis and makes it worse if you drink too much coffee.
I have not seen improvement with other caffeine sources, with the possible exception of chocolate.
How much coffee do you drink in a day, and how many grounds do you use in it?
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"Thanks for this!" says:
FREDH (03-25-2017)

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Old 12-11-2018, 02:09 PM #12
Boyd Ross Boyd Ross is offline
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has any had the soliris treatment?
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Old 02-20-2019, 05:54 PM #13
susan_mela susan_mela is offline
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Default chocolate it is

Amazing. That would (no joke) explain my "chocolate usage" (minimal - I also do not do flour or much sugar) yesterday. I've had to cut down my caffeine consumption, so I guess my body was screaming. Thanks for the info.
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Old 02-20-2019, 10:27 PM #14
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There is a sugar-free chocolate called ChocZero. They use monk fruit instead of sugar. That might be a good one for people to try.
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Old 03-27-2019, 10:17 PM #15
sholton6882 sholton6882 is offline
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Quote:
Originally Posted by cait24 View Post
So coffee and dark chocolate give me some relief to my MG. Have you experienced the same results? Do you think it is save in moderation to use these on a daily basis to help during bad periods?

Let me know what you think or if you have had a bad experience with these.

Thanks
kathie
Hi Kathie,
Thanks for starting this thread. I learned a lot of information. I drink coffee all day long. Didn’t realize I was helping my MG in the process.
Thanks,
Sandra
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