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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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03-24-2017, 03:58 PM | #11 | ||
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Newly Joined
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I am new to this site. And I can see that these posts are about 4 years old. Very recently, I had an interesting event. I have not been a coffee drinker but recently started drinking coffee. I felt significantly better. I felt that I was getting more oxygen. Then I got worse where weakness is concerned. And my ankles became much weaker than usual, so bad I could barely walk. I had to stop drinking coffee. I looked on the Internet and found out that coffee is a bronchodilator, and on this site that it improves weakness with myasthenia gravis and makes it worse if you drink too much coffee.
I have not seen improvement with other caffeine sources, with the possible exception of chocolate. How much coffee do you drink in a day, and how many grounds do you use in it? |
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"Thanks for this!" says: | FREDH (03-25-2017) |
12-11-2018, 02:09 PM | #12 | ||
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Junior Member
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has any had the soliris treatment?
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02-20-2019, 05:54 PM | #13 | ||
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Junior Member
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Amazing. That would (no joke) explain my "chocolate usage" (minimal - I also do not do flour or much sugar) yesterday. I've had to cut down my caffeine consumption, so I guess my body was screaming. Thanks for the info.
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02-20-2019, 10:27 PM | #14 | ||
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Grand Magnate
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There is a sugar-free chocolate called ChocZero. They use monk fruit instead of sugar. That might be a good one for people to try.
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03-27-2019, 10:17 PM | #15 | ||
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Junior Member
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Quote:
Thanks for starting this thread. I learned a lot of information. I drink coffee all day long. Didn’t realize I was helping my MG in the process. Thanks, Sandra |
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