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-   -   plasma exchange (https://www.neurotalk.org/myasthenia-gravis/186265-plasma-exchange.html)

Southern Bell 04-06-2013 02:04 PM

I am so glad that you are seeing some improvement. I hope things keep going on the right track.

Keep up the good fight!

Southern Bell
:grouphug:

huntress 04-07-2013 06:50 PM

going home monday the 8th. Tomorrow. yay so happy. Got the Catheter out of my neck from the plasma exchanges today. feels so good not to have that thing there. Still a bit of double vision but other than that i am feeling wonderful. I can swallow, even with a tube in my nose and down my throat. I feel i am only going to keep improving, I mean they gave me 5 ivig's, all 5 plasma exchanges. Im now on predisone, have been since the 18th of March so that should I pray be kicking in. I have my mestinon, 8 hour pill. They will be starting me on immuran soon. but i am vary pleased. God works miracles I say. It was He who saved me. Guilding the doctors hands and everything that has gone on. They said my collapsed lungs are getting stronger. Have another chest ct scan and speech path appointment also an appontment with an awesome doctor who knows myasthenia gravis. Lehey is awesome with neuro's. they know what they are doing.

cait24 04-07-2013 07:36 PM

I am so happy you are doing so well and going home from the hospital

kathie

Interested 04-14-2013 02:39 PM

Happy for you!
 
Quote:

Originally Posted by huntress (Post 972845)
going home monday the 8th. Tomorrow. yay so happy. Got the Catheter out of my neck from the plasma exchanges today. feels so good not to have that thing there. Still a bit of double vision but other than that i am feeling wonderful. I can swallow, even with a tube in my nose and down my throat. I feel i am only going to keep improving, I mean they gave me 5 ivig's, all 5 plasma exchanges. Im now on predisone, have been since the 18th of March so that should I pray be kicking in. I have my mestinon, 8 hour pill. They will be starting me on immuran soon. but i am vary pleased. God works miracles I say. It was He who saved me. Guilding the doctors hands and everything that has gone on. They said my collapsed lungs are getting stronger. Have another chest ct scan and speech path appointment also an appontment with an awesome doctor who knows myasthenia gravis. Lehey is awesome with neuro's. they know what they are doing.

:):)
Praise the Lord! Glad you are doing so much better!

huntress 04-16-2013 09:17 PM

Its been a week since ive been home. I must tell you that the predisone is giving me bad symptoms now. Moonface,insomnia,anxiety, the shaky hands, I don't feel like me any more. Plus the double vision is bad when I take the 60 Mg of predisone. They tell me I'm moody too. Lol. Want to talk to doc about starting immuran or cellcept. Any one take those? If so which one would be best? Thanks all

susanj 04-19-2013 10:55 AM

I'm SO glad that you are feeling better. when I was in crisis, it took 6 plasma exchange treatments till I saw improvement. My veins are crappy- had to have the treatments thru a port in my neck. Just wondering if others have that situation too? Again- I'm so happy that you are feeling better! Stay strong!

Miranda 04-25-2013 10:53 PM

Glad to see u are feeling better


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