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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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I saw on the news tonight about a company that does genetic screening for 200 disease markers for $99. Many of them are autoimmune diseases but MG is not on the list. I think I am going to send for the kit. Since so many MGers have more than 1 autoimmune disease, I think it is worth the expense to see what else the future might hold for me.
kathie |
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Junior Member
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My father has Parkinson's Disease and sent for the kit (or at least one in that price range). He showed me the results and to be honest, the report seemed a little 'generic'. Perhaps I didn't really interpret it correctly. It's not clear to me what I could do if I learned I had a slightly elevated risk of getting 50 different rare diseases That's the type of output that was on my father's report. Before I read the report it sounded like a great idea. Perhaps someone could tell me how to utilize a set of results like that?
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I am sending for the kit and I will let you know how it goes. It takes about 8 weeks. It lists a bunch of auto-immune disorders such as RA, MS, lupus, sjogrens, chrons,and celiac. At this point in my life, 53, I would like to be on the look out of other issues. MG has so many symptoms, there are so many side affects of the MG drugs & treatment, and it took so long to get the MG diagnosis, I would like to be fore-warned if I have a predisposition to any other auto-immune disease.
If MG were on the list and I knew about this a year ago, I would have gladly paid $99 to narrow down the diagnosis and prevent a year of doctors and other unnecessary tests. Also, with my reduced energy and my life focusing around MG, I might miss or ignore some other serious symptom. MG tends to take over our lives. kathie |
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Wisest Elder Ever
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If you are talking about 23andMe, they also provide methylation DNA errors, which can be critical for patients, because poor methylation leads to nerve damage eventually, as well as cancer and heart attacks.
B12, and folic acid have to be methylated in the body in order to work at the biological tasks that require them. If one has the MTHFR mutation, this cannot work, and therefore the person deteriorates slowly. Several of our PNers here have had this test, and all so far showed methylation mutations. To minimize this error, taking methylcobalamin for the B12 and methylfolate for your folate will bypass the error, and restore biological systems. These both are available OTC.
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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