Finally, a year after my diagnosis, my neurologist decided to do a thymic cat scan. I had it done last Friday. I should know something next week. I don't know whether to wish for a thymoma, surgery, and hope for a cure; or to wish that the test comes back negative.

Another note; I changed blood pressure medications. I got off of the beta blockers. I have noticed some improvement though I am certainly not back to normal.

I would wish for an answer, accept what it is and go from there. That way you won't be disappointed if it is positive or negative news. Good luck

Even if there is not a thymoma, if they see hyperplasia or enlargement and you are under 60 yrs of age, I think the general rule now is to do a thymectomy now. From what I read it has a pretty good outcome with almost a third going into remission, another third seeing improvement and the other third no worse when they started. I remember reading that remission can take up to 2 years because antibodies can circulate for that long.

I am hoping for a thymectomy. I think the neuro said that they often do plasmapharesis first to get you in good shape and do the surgery within a couple weeks after that.

i am hoping for the best outcome for you and remission,
kathie

Celeste, I have been thinking about you. Any word on your cat scan yet?

kathie

I called this morning and the results were not there yet. Hopefully I'll know something tomorrow.

Well I guess I get to worry all weekend. I was told that I could be told the results of the scan over the phone by the receptionist. Now that the results are back, they won't discuss it with me. The doctor is out today. He will call me if he happens to get their message; otherwise, I get to try again Monday. I think that they found something.