Hi! I've been struggling lately and my rheumy decided to put me on Cellcept if I was willing. I hated reading about the side effects, but the possibility of being able to walk normally & not be so disabled won out. So I started Cellcept and prednisone (only 5 mg) once a day.

Here's my question...I'm starting my 4th week on Cellcept. I started with one 500mg tablet in the morning and one in the evening. I did that for 2 weeks.
Then increased to 2 in the morning and one at night, and that's where I am now. Next Monday I increase it to total of 4 tablets a day.

During the first 2 weeks, I had about 3-4 days where I didn't feel all that different but my husband noticed a marked improvement in my overall strength. But then it went away.

Since that mini bit of improvement, there's nothing. I'm just as decrepit as before, if not even more so. I do notice my drooping eye is a bit better, but I've got pain and now swelling in my arm and pain in the glands under my arm...

I'd rather not be on this stuff at all if it's not doing anything.

I thought I'd see something, ...some hint of improvement by now.
Is it normal not to see even a gradual improvement by your 4th week?

Thanks so much for listening.