I have had slurred speech for three and a half months. This past week, my speech seems to be coming back to normal. I have finally been scheduled for IVIG next week - five consecutive days. Does this kind of thing happen often? I was diagnosed in August 2012 after a short period of slurring. Then a couple months of normalcy, then this flare up in December which has continued for a much longer period of time. Since I'm still new to all this, I don't know what to expect....something new every day it seems. I'm on prednisone ( 30 mg) and mestinon (4 a day). Neurologist has said after IVIG, I will be on immuran(?). Comments please.

My slurred speech seems to come and go at random. I am on mestinon 5X per day. Nothing else. I haven't had it in a while thank goodness.

Yes, the nature of the condition is it will wax and wane. You will have periods of time where it isn't so bad and others when it acts up.

Hi, BobbyLee. Welcome!

Do you talk a lot? If you use those muscles more, or on a consistent basis, they can become weaker. Or MG can make absolutely no sense whatsoever! Did you socialize with family a lot in December, over the holidays? That would tank anyone's bulbar muscles.

Please think long and hard about being immunosuppressed. Does your family have a history of cancer? Do you get infections easily? Maybe a discussion with your primary doctor would help to make the best decision for you.

And being on Pred AND Imuran might not be a good idea. Again, you have to discuss this with your doctors. Maybe even get a 2nd opinion. There is such a thing as being overly suppressed. More isn't always better when it comes to drugs.

Also, if you go on Imuran, the doctor should test you for the TPMT enzyme before you start taking it!

I don't know where you live or what season it is now but be careful out in the hot weather. MG can get so much worse when your body is hot.

I hope you and your docs can come up with a plan that works best for you. Keep asking questions! There's a lot to learn with MG.

Annie

Mine comes and goes too but overall is much better than when I first started. Now I get it if I talk a lot throughout the day, and even then it doesn't ALWAYS go to the point where others can notice ... and sometimes I even ask if they can hear it and they say "no" (but I can feel it and my tongue starting to go "off").



I'm glad yours cleared up!

I totally understand I have been diagnosed since I was 22 and I'm now 33 what you are describing is very normal ivig always made me feel so much better it is like a reset button when I took it I also went on immuran be careful it's immuno suppressive which is great for mg but be ware of sick people u will catch things easier has you doc mentioned surgery yet I had it the first year but unfortunately it didn't help me