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Old 04-29-2013, 08:35 PM #11
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To the best of my knowledge, there is no such thing as 8 hour mestinon. There is Timespan, which is 180 mgs, which some use at night.

Sorry you're having such a tough time. Maybe a chat with your doctor or even pharmacist (about the mestinon) would help.
Yes def. Going to talk to my pharmacists about that. Had my 6th plasmapheresis today along with installation of my temp catheter. Lol...going to start azthioprin tomorrow. Still afraid of them but I need them and my doctor is one of the top in mass. He specializes in Mg. Dr Russell if anyone knows him.
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Old 04-30-2013, 07:57 AM #12
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I don't think I could make it if I went 8 hours without my mestinon. After 4 hours I start to go way down hill.
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Old 04-30-2013, 06:56 PM #13
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Hang in there.

Azathioprine does work because I've been on it for about 2 years now @ 150 Mg a day.
Recently I did not rly listen to my doctors and stopped taking azathioprine for a while. I am now back to a very weak state( a little above crisis).

So now, like you I'm back on azathioprine building it back up in my system. This started Feb 2013. I expect to see results within 4 months. Although from the past, it took 6 months to kick into my system. I am also on prednisone.

I wish for you the best results asap!
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Old 05-10-2013, 08:54 AM #14
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I started azathioprin yesterday. My left foot is swollen. Has anyone else had swollen sometimes tingly feet starting aza?
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Old 05-10-2013, 09:07 AM #15
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I would suspect the foot issue is plasmapharesis related. You might want to run that by your doc's office.
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Old 05-10-2013, 01:05 PM #16
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I would suspect the foot issue is plasmapharesis related. You might want to run that by your doc's office.
Really? I have never had that before with plasmapheresis. I ate some cheese sticks yesterday maybe its sodium retention from it. With being on prednisone too though I never had the swelling issue till I started taking aza. I see my doc in a week. Praying its nothing to worry about.

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Old 05-10-2013, 01:42 PM #17
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The reason I say plasmapharesis is just the fact that your body fluids have been mechanically and chemically altered, which could cause some edema. In the worst case scenario, you could have a little clot somewhere in that leg. The fact that it's unilateral also is unusual, thus making it less likely to be a med reaction.

Keep an eye on it, and if it feels warm or looks red or bluish, or becomes painful to the touch, get seen ASAP.
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Old 05-10-2013, 02:24 PM #18
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The reason I say plasmapharesis is just the fact that your body fluids have been mechanically and chemically altered, which could cause some edema. In the worst case scenario, you could have a little clot somewhere in that leg. The fact that it's unilateral also is unusual, thus making it less likely to be a med reaction.

Keep an eye on it, and if it feels warm or looks red or bluish, or becomes painful to the touch, get seen ASAP.
Never knew that about the plasmapheresis. Good thing to know thank you. Its just swollen my legs are fine which is a good sign. See we learn something new every day. Strange though that azathioprin would cause the swelling one would think. Another thing I noticed my hunger has gone down and food is blah...Lol which with prednisone making you hungry its a good thing. Lol
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Old 05-10-2013, 10:15 PM #19
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ROkay so I took azathioprin my 50 Mg. I take 150mg a day 2 morning 1 evening. My foot was going down the swelling now after that evening 50mg it has swelled back again. Def a side effect to tell y'all about. Telling my doc tomorrow.

Lisa
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