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Old 05-05-2013, 08:03 AM #1
Unsure81 Unsure81 is offline
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Join Date: Apr 2013
Posts: 81
10 yr Member
Unsure81 Unsure81 is offline
Junior Member
 
Join Date: Apr 2013
Posts: 81
10 yr Member
Question AChR re-test - has anyone had more than one test?

Hi everyone - I hope you are all ok

I was just wondering if anyone has had more than one AChR antibody test? I went back to my neurologist for my MRI, Chest X-Ray and blood results - everything was clear but he was annoyed that they had missed my AChR blood test and said it was the most important one. He has finally said he is considering Myasthenia (which is good as I didn't want to be the first to mention it!)

Anyway, back to my question! (Sorry!) I was tested about 4 months into my illness 9 years ago and had a negative AChR result and therefore no diagnosis. Thankfully my symptoms improved 18 months later and reduced to mild symptoms which I was able to adjust my lifestyle to. I am now 2 months into a flare up - one sided facial droop, weak thigh muscles, tired neck and arms and the scariest of all...chest pressure and not feeling able to breathe fully when i try too hard to push through the fatigue.

I am just wondering what the chances are of having a different result this time and wondered if any if you had more than one test and if you had the same or different results? I know there is some talk of antibodies being harder to detect in the first 12 months of illness but I'm not sure how true that is - and if it is the case why isn't everyone re-tested after a year?? Also i know some tests can produce false-negative results but I'm not sure if this applies to the antibody test?

I would be so grateful for any help or feedback - thank you!
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