[cait24]

I got the results of some of my regular blood work. My TSH is up again but my free thyroxine is still normal. Neuro thought it might me Hashimotos thyroiditis. I had half my thyroid and 2 parathyroid removed 30 years ago for a benign follicular adenoma. i have never felt that I had the same stamina since that surgery. I have had fluctuating bouts of lethargy and weight going up and down, etc since then. My thyroid antibodies are negative.

I have an appointment next Wednesday with an endocrinologist at Jeff. Neuro asked if my parathyroid had been evaluated. My calcium has been low normal to low for a while even though I take supplement so the GP ordered a parathyroid panel too. My CBC hematocrit, hemaglobin rbc count has had a downward trend for a while but still in the normal range. My RDW has been above normal for years. Could this be pernicious anemia or more autoantibodies? I heard that MG, hypothyroid and pernicious anemia sometimes happens together. Does anyone else have fluctuating thyroid. Can it be hypothyroid when the free thyroxine is still normal. I hope they decide to treat the hypothyroid since that causes muscle weakness and fatigue too. Any feedback would be appreciated. More blood work and CT of thymus is scheduled for tomorrow. I just have a feeling that more abnormal results are coming.

I am on 40 mg of pregnisone for 2 weeks and not feeling any better but I am more stable. I have had one more fall, of course on the same injured knee. I wish they would up the pregnisone and start another course of alternative treatment. I really think my body could use a jump start with some IVIG. I have been so long waiting for treatment, I do not want to take a conservative approach and summer is coming soon and the heat will just make me worse. A couple weeks ago it hit 70 degrees for 2 days and I felt so ill.

thanks
kathie