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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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06-05-2013, 04:59 PM | #1 | ||
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Just wanted to follow up that there hasn't been a change with my vision or health. I tried the Mestinon and that did help with fatigue but didn't touch the vision issue. I started Lexapro for a few weeks and it helped with the depression. Counseling is so so and I'm not sure if I like my neuro-psycologist. Anyways, I get my lumbar puncture results tomorrow. I started getting Tinnitus last week where it was loud enough to give me a tough time falling asleep. I told my doctor's and they said try tapering down the Lexapro and I may try something different. Sucks, because I was doing well until that started. My ears have been pretty sensitive to noise as well, and I don't know if some of you know this or not, but apparently MG can effect hearing and cause hyperacusis because of weakened ear muscles. I'm not going to say that's what's happening to me right now, but who would have thought?
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06-05-2013, 06:36 PM | #2 | |||
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I have had constant tinnitus that started with my MG symptoms and has never gone away. I am very sensitive to noises. Noises seem very loud to me and startle me, but they do not seem to bother anyone around me.
kathie |
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09-22-2013, 04:49 PM | #3 | ||
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I had most of the same issues when I first was diagnosed. My Opthomologist was the first one to recognized it. Most went away though when I first started on meds. Now it only comes back slightly when I am tired or extremely hot. And yes stress does seem to exhasperste the symptoms. It will get better..... |
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09-26-2013, 08:40 PM | #4 | ||
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Dear Strizzlow20,
The strange occular symptoms you are getting could easily be from MG. I have similar focusing problems, blurriness and even double vision. It all depends on how tired I am and how late in the day it is. I find resting with my eyes closed for at least 30 minutes when it gets bad helps. Also the more stressed I am the worse it is. Some people claim ice packs help, I haven't tried that. What does your Neuro tell you about occular MG symptoms? Let me know. Quote:
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12-03-2013, 12:45 AM | #5 | ||
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12-09-2013, 08:11 PM | #6 | ||
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Mayo Clinic neuroopthalmologists and the MG specialist said no way. 2 other eye doctors and 3 neuros total said no. It's present when one eye is closed too which wouldn't be the case with Myasthenia Gravis according to them. Whatever is happening is bilateral though. I am now having weakness in my feet to my shins, elbows to hands, and my face and jaw muscles at times. Me feet feel like lead and so do my hands at time. I'm getting twitching as well, especially at the bottom of both eyes and not the eyelids. Some other members agree with you on here, but sensory issues, balance, and the vision issues according to the physicians point away from MG. They tested all of the different antibody tests at Mayo. Their range for the binding antibody is 0-.02. I tested at a .14, 7 times over the high end of the normal range. We're looking at different possibilities such as MS, although all imaging has been clean, including an EMG and single fiber EMG. One neuro said I don't have MG because the single fiber EMG was negative. She said gluten was my problem lol. I tried it, and same weakness. Mestinon hasn't been very effective and I do not feel a ton better when I first wake up. My legs will be fine, but within 45 seconds of standing they have an internal tremble and weakness that is hard to describe. Thanks for the reply!
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