Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
Reply
 
Thread Tools Display Modes
Old 05-12-2013, 01:58 PM #1
AaLF AaLF is offline
New Member
 
Join Date: May 2013
Posts: 2
10 yr Member
AaLF AaLF is offline
New Member
 
Join Date: May 2013
Posts: 2
10 yr Member
Default SERIOUS ISSUE: MG & operations

My wife was diagnosed with ocular MG 9 years ago. Things are fine apart from a 'double vision' effect. Nothing else has happened. Her family doctor doesn't believe its MG.

PROBLEM - she has a BMI of 46 (255lbs). Muchly overweight and seriously needs a gastric sleeve stomach op. to lose weight.

We haven't had a neurologist for a few years now. The last one was obnoxious & my wife refuses to return.

So.......... tell me about MG (ocular) & operations. Is it safe to 'go under' with ocular MG?
AaLF is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (05-12-2013)

advertisement
Old 05-12-2013, 02:19 PM #2
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

I would definitely consult not just a neuro, but an MG specialist at a large teaching hospital before undergoing an operation.

I had fatigue and eye symptoms starting several years ago. I underwent 2 surgery, gallbladder first and 2 years later, hysterectomy and abdominal hernias repairs. Looking back, this was probably due to the muscle weakness from MG. Each operation left me weaker and the last one exacerbated the MG. I still have not recovered to how I felt before that surgery and not sure I will. Surgery is one of the stressors that exaccerabates MG.

Please seek an opinion from an MG specialist and good luck.

kathie
cait24 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (05-12-2013), pingpongman (05-12-2013)
Old 05-12-2013, 02:31 PM #3
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
4-eyes 4-eyes is offline
Member
 
Join Date: Aug 2009
Posts: 642
10 yr Member
Default

Hi,

I have had a couple of surgeries since being diagnosed and have had no issues whatsoever as far as increased weakness goes. However, bariatric surgery being somewhat "elective" and one that will affect digestion and metabolism forever is one I'd try to forego if at all possible. Trying to lose weight "the old fashioned" way would take longer but is without the risks of surgery and the aftermath.

If many serious, medically supervised weight loss attempts have been made already, and surgery seems the ONLY solution, then I would definitely get a neuro on board before the surgery, and to help with any needs after. Any surgery has risks in and of itself, and MG only increases the need to be cautious.

Good luck to your wife!
4-eyes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (05-12-2013)
Old 05-12-2013, 03:06 PM #4
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

Hashmimotos hypothyroidism is another autoimmune disease often seen with MG. Has your wife had her thyroid levels checked? I have both MG and Hashmimotos hypothyroidism.

kathie
cait24 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ginnie (05-12-2013)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
MG & operations AaLF Myasthenia Gravis 4 05-13-2013 11:18 AM
still having pain after 2 operations miller1 Hydrocephalus 0 10-23-2007 03:02 PM


All times are GMT -5. The time now is 10:07 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.