Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


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Old 05-22-2013, 05:02 PM #21
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Quote:
Originally Posted by Fortunatos View Post
Hello Celeste, Eye drops may not be a potential problem. Symptoms, such as, burning, itching, red, dry eyes, for example, need to be investigated.
I think that it has to do with gnats and pollen in my eyes. You can't go anytime without something in them. I think that we live in a jungle.
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Old 05-23-2013, 03:30 PM #22
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Adamrach, I think you missed one point of my previous post: if you have now eye pressure above 30, your glaucoma is not adequately controlled with your drops...
Maurice.
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Old 05-23-2013, 05:28 PM #23
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Adamrach, I think you missed one point of my previous post: if you have now eye pressure above 30, your glaucoma is not adequately controlled with your drops...
Maurice.
Yes that is why we are doing 3 different drops a day now three times a day, we think that every time I go get ivig and get solemedrol as a premed that it keeps pushing it up, I never had this problem till we did the solemedrol. Next visit if it is not down we will talk more options. It's really frustrating. And I hate the drops. I do pinch my ducts so not much can get in my system.
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Old 05-24-2013, 09:51 AM #24
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Adam said, "...we think that every time I go get ivig and get solemedrol as a premed that it keeps pushing it up, I never had this problem till we did the solemedrol..."

Adam, You said you never had this problem until the solemedrol. Did you report ocular symptoms, and if so, to whom? If you didn't report anything, then how did the diagnosis come about? For example, did you just happen to have a standard eye exam scheduled? Thx..Let me know...
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Old 05-24-2013, 10:28 AM #25
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Originally Posted by Fortunatos View Post
Adam said, "...we think that every time I go get ivig and get solemedrol as a premed that it keeps pushing it up, I never had this problem till we did the solemedrol..."

Adam, You said you never had this problem until the solemedrol. Did you report ocular symptoms, and if so, to whom? If you didn't report anything, then how did the diagnosis come about? For example, did you just happen to have a standard eye exam scheduled? Thx..Let me know...
I started having really bad pressure and eye pain, I made an appointment with me regular eye doctor who promptly went me to an eye specialist,
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Old 05-24-2013, 01:29 PM #26
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I started having really bad pressure and eye pain, I made an appointment with me regular eye doctor who promptly went me to an eye specialist,
Smar-r-r-r-t, Adam! Myasthenics have a tendency to blame MG for everything. Further, some people are afraid to complain about more or unusual symptoms; understandable. Thank you, and to everyone else who has posted....!
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Old 05-24-2013, 06:48 PM #27
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It is easy to blame everything on our MG. I was feeling terrible a few days ago. I assumed it was the MG. Then I realized that my blood pressure had crashed. I was running 90/46 when my body is used to hypertension. I cut back on my blood pressure medicine and felt much better. Now I have had to go back to the normal dosage. All this stuff gets complicated.
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Old 06-05-2013, 09:28 AM #28
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For those interested, there is a Philadelphia-based web site
which hosts a monthly, question and answer period. Quite frankly, I don't know how these two Opthals find the time--pretty generous. Note the schedule...there will be a discussion about IOP monitoring and as well,
steroids.


http://willsglaucoma.org/glaucoma-su...dule-of-events

It is the easiest sign-in!

A reminder that this meeting is tonight. If you look at the schedule, in a few months, the doctor will talk about how to prepare for a visit to an eye doctor. I think this might interest those with vision problems. If you are unable to attend, the site will post highlights of the meeting.

Perhaps we'll see some of you tonight, if you can figure out the time zone...took me a minute or two... MST? DST?.....
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Old 06-09-2013, 08:16 AM #29
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So those of you on Alphagan and azopt have you noticed any MG weakness?
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Old 06-09-2013, 09:30 AM #30
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So those of you on Alphagan and azopt have you noticed any MG weakness?
Hello Adam I checked to see when your next appointment was, only a couple of days ago.

I was on Alphagan for roughly, 4 to 5 months, both eyes. I did not notice any MG weakness.
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