[susanj]

hi all- I've had MG since 2000. I'm on Mestinon and Imuran. Had a thymectomy in 2000; crisis in 2001- improved only after 6 plasma exchanges. Since then have felt worse on and off, but it usually passes within a few wks. Its almost 3 mos now- thank goodness, I can see, breathe, swallow..but my palate is weak after not much talking, and my arms and legs are weak. Have an appt with my neuro on the 31st.
Anyhow- I was wondering how your docs handle exascerbations which are not at crisis level. I have upped my Mestinon to 90 mg every 6 hrs (helps a bit) and rest alot..have done very little for several wks. At points I've felt pretty good, try to do a little more, and backslide.. Was thinking that maybe a change to cellcept from Imuran would help? Also not sure if plasma exchanges are done in w non crisis symptoms? Have heard that IVIG works only for short periods. Any thoughts? Thanks so much!!