Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
NeuroTalk Support Groups > > >

Wheelchair Use

Reply
 
Thread Tools Display Modes
Old 05-23-2013, 05:50 PM #1
uncledave uncledave is offline
Junior Member
  
Join Date: Jul 2012
Posts: 62
10 yr Member
uncledave uncledave is offline
Junior Member
 
Join Date: Jul 2012
Posts: 62
10 yr Member
Default Wheelchair Use
Since starting Mestinon about 10 months ago I am able to get around MUCH better than before. For example, if I go to a convenience store to pick up a few items I have no problem walking around in the store. On the other hand, a long shopping day at WalMart is more than I can take. I either use my own wheelchair or I ride one of the power buggies there. Is this pretty typical? I was hoping that Mestinon would "cure" my walking problems. It has helped a lot but not as much as I wanted.
uncledave is offline   Reply With QuoteReply With Quote

advertisement
Old 05-23-2013, 06:23 PM #2
southblues's Avatar
southblues southblues is offline
Member
  
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
southblues southblues is offline
Member
southblues's Avatar
 
Join Date: Jul 2012
Location: Georgia USA
Posts: 818
10 yr Member
Default
I have a lot of trouble walking if I try to do too much of it. I don't do a lot of the family shopping. If I try to stand all day, I get all wobbly. I lecture from a stool now and nobody has noticed anything wrong. Well sometimes they stare at my eye and I know that it is either twitching or closing. I suspect that I am more active than most people that have trouble getting up and down. I've never used the power buggies. I just leave when I get too tired.
__________________
Celeste
southblues is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
uncledave (05-23-2013)
Old 05-23-2013, 07:02 PM #3
Stellatum Stellatum is offline
Senior Member
  
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default
During a good spell, I can go to WalMart, or teach standing for a couple of hours with no assistance. During a bad spell, I would bring my rollator to WalMart, so I could rest by sitting now and then, especially on the check-out line (standing is harder than walking). During a really bad spell, or in the evening of a day during a bad spell, I would sit on a chair to teach, and I would skip WalMart altogether.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
southblues (05-23-2013)
Old 05-23-2013, 07:41 PM #4
uncledave uncledave is offline
Junior Member
  
Join Date: Jul 2012
Posts: 62
10 yr Member
uncledave uncledave is offline
Junior Member
 
Join Date: Jul 2012
Posts: 62
10 yr Member
Default
Quote:
Originally Posted by Stellatum View Post
During a good spell, I can go to WalMart, or teach standing for a couple of hours with no assistance. During a bad spell, I would bring my rollator to WalMart, so I could rest by sitting now and then, especially on the check-out line (standing is harder than walking). During a really bad spell, or in the evening of a day during a bad spell, I would sit on a chair to teach, and I would skip WalMart altogether.

Abby
I've been thinking about getting a rollator myself.

Sounds like the symptoms I still have are par for the course.

Thanks for your reply.
uncledave is offline   Reply With QuoteReply With Quote
Old 05-23-2013, 07:47 PM #5
cait24's Avatar
cait24 cait24 is offline
Member
  
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default
Mestinon is no cure. It does not get to the source of the problem. It just temporarily relieves symptoms. And the therapeutic level is only reached for 2.5 hours of my 4 hour dosing for me. SO my life is planned around my mestinon dosing schedule. But it is nice to be able to predict when I will be strong so I can schedule activities like shopping and cleaning which would be impossible without it.

kathie
cait24 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
sandy56 (05-24-2013), southblues (05-23-2013), uncledave (05-23-2013)
Old 05-23-2013, 08:18 PM #6
Stellatum Stellatum is offline
Senior Member
  
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
10 yr Member
Default
Quote:
Originally Posted by uncledave View Post
I've been thinking about getting a rollator myself.
Highly recommended! A rollator is perfect for MG, because it allows you to walk normally as much you can, but rest when you get fatigued. Then you can gather strength and walk some more. It's also good if you have trouble with balance, and you can put stuff in the basket under the seat. Plus, mothers pull their little kids out of your way.

Abby
Stellatum is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
sandy56 (05-24-2013), uncledave (05-23-2013)
Old 05-23-2013, 09:32 PM #7
pingpongman's Avatar
pingpongman pingpongman is offline
Member
  
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
pingpongman pingpongman is offline
Member
pingpongman's Avatar
 
Join Date: Aug 2010
Location: South Carolina
Posts: 714
10 yr Member
Default
In the larger stores I use the electric carts plus I got a handicap sticker to save legs in full parking lot.
Mike
pingpongman is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Juanitad (05-23-2013), sandy56 (05-24-2013), southblues (05-23-2013), uncledave (05-23-2013)
Old 05-24-2013, 11:06 AM #8
iwasanurse iwasanurse is offline
Junior Member
  
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
iwasanurse iwasanurse is offline
Junior Member
 
Join Date: Apr 2009
Location: Milton, Florida
Posts: 41
15 yr Member
Default
I also use the power carts in a store and use my rollator in my home and Dr.'s offices. I agree standing is worse than walking. However, I can only walk about 30 feet before the muscles in my back and legs give out. I am on Pyridostigmine 60mg 5 times daily, methlprednisolone 6mg daily, azathioprine 50mg 3 times a day.
iwasanurse is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
uncledave (05-24-2013)
Reply

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
who's in a wheelchair? ol'cs Parkinson's Disease 13 12-19-2011 05:13 AM
wheelchair parking and wheelchair toilet BobbyB ALS News & Research 0 08-09-2008 10:49 AM
wheelchair to car sassy Multiple Sclerosis 15 01-30-2008 09:34 AM
How many of you are in a wheelchair? Steff Peripheral Neuropathy 15 08-27-2007 09:03 AM
why can't our wheelchair's do more ? BobbyB ALS 5 09-15-2006 05:01 PM


All times are GMT -5. The time now is 05:27 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home