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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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I was just wondering how those of you with problems holding your head up deal with it? I have bought 3 different neck braces and none of them really help, they are so uncomfortable. I get temporary relief with ice, I've even considered tying my head to a high back chair....(like maybe my car seat..lol)... or getting a wide board to go from my waist to my head and having someone strap me too it!
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