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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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05-30-2013, 06:08 PM | #1 | ||
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Hello,
I have MG, but not the ocular kind. Male, mid-forties. No thymus issues. At any rate, Mestinon did zilch for me -- it did not help my shortness of breath or weak shoulders. I had dermatitis last month, and took two rounds of prednisone over the course of about 6 weeks. The highest I got was 40 mg per day. It was one of those 3-week taper packs. I felt best when my dose was between 20-40 mg. The prednisone improved my quality of life. Muscle and general fatigue gone, energy up, and sleep much, much better. I concluded my second round of prednisone, but after a few weeks, my MG symptoms seemed to come back a little bit. I had my 6-month followup today with my neurologist and told him my experiences. He gave me a script for 10 mg of prednisone every other day. It seems most folks taper up to a dose of 30-60 mg of prednisone, then begin a slow taper to a lower, every other day dose. Is starting treatment fresh on a 10 mg EOD maintenance dose a good way to do it, too? Is it worth my time to try this maintenance dose, or should I be pressing for a more traditional taper up/down before the maintenance dose is initiated? Thanks! |
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