Hi
Does anyone out there go to a MDA clinic for treatment? My Neuro doc has told me to see him there from now on. I am not sure why he wants me to do this as apposed to just seeing him at his office. I have insurance (tricare prime) but need referrals to see him.

My NM doctor treats at the clinic in St Pete. I was newly diagnosed last month after an ER visit. I had a follow up visit with the NP 2 weeks later. The earliest appt at the MDA clinic is 8/21. I was told that I can only be seen at the clinic every other month. I have concerns that is too long before being seen again.

I guess I am just not clear how the clinic works. The answers from the person I spoke to at the clinic were not very helpful. Any help would be appreciated
Sandy

I've always gone to an MDA clinic. It's just part of the neuro's office, which is a huge neuromuscular clinic run by a huge university medical school/teaching hospitals.

Every other month sounds more than sufficient to be seen. I have rarely gone less than 3 mos between visits, even when I was severely affected. I use email to communicate with my doctor and the few times when I've been "in trouble" with the MG I was seen--never forced to wait.

Once you get started on a protocol, even a successful one, you will have ups and downs with symptoms. Calling every time you have a bad day is not necessary or welcomed by the doctor, but when something is different or rapidly deteriorating, a call or email is warranted. You should probably ask your doctor what he considers worthy of a call.

The best part--you don't have to pay a dime for the neurologist's services. Meds and other stuff you may need, however will cost you money.

Hope this helps a little.

Thanks. This is all so new to me. I feel better about the MDA clinic.

When I can finally see the doctor I will ask when and how to communicate with him. Last time I was in his office,he had agreed to let me start tapering off prednisone at my next appt. I still plan to do so this month. I am not sure where treatment will go from there.

I appreciate the veterans helping out us newbies.

Sandy