Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-05-2013, 03:04 PM #3
Quandry's Avatar
Quandry Quandry is offline
Member
 
Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
Quandry Quandry is offline
Member
Quandry's Avatar
 
Join Date: Nov 2012
Location: Arizona
Posts: 131
10 yr Member
Default

I was diagnosed by a Rheumatologist, because of a positive anti ach antibody test. It was positive for modulating antibodies. The Rheumatologist gave me the pyridostigmine to see how I reacted, and my reaction was good, but this Neurologist I'm seeing says that he can't count on my reaction, he needs actual data. He asked me how the Rheumy knew I was doing better, and I said "because I told him." That isn't enough for this doctor. He was condescending, making me feel as though I'm lying about what's going on. I hope I get approved to go to the Mayo clinic. With this Neurologist, I felt like I was on trial. He kept asking me questions that I didn't know the answer to. He was very intimidating.

There is evidence in my family of Channelopathies and I think this needs to be looked into. Whether or not it's MG, I know there is something going on. The thing I don't understand is that the last time I saw him he commented on how weak my muscles were. So, why am I made to feel like I'm on trial? I really don't think I'm imagining all this. If I am, then they need to refer me to a psychologist.
Quandry is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Undiagnosed? Gerudo_Valley General Health Conditions & Rare Disorders 16 06-07-2013 10:14 PM
New Undiagnosed AnnaMarie Myasthenia Gravis 16 06-03-2012 11:38 PM
undiagnosed still... rachelyse General Health Conditions & Rare Disorders 4 09-07-2011 03:35 PM
Hi. I'm new - undiagnosed sx.... lynxgal New Member Introductions 6 06-20-2008 09:19 AM
undiagnosed chantereine New Member Introductions 5 01-31-2008 10:46 AM


All times are GMT -5. The time now is 12:57 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.