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Old 07-11-2013, 02:34 PM #14
Fortunatos Fortunatos is offline
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Join Date: May 2013
Location: Canada
Posts: 194
10 yr Member
Fortunatos Fortunatos is offline
Member
 
Join Date: May 2013
Location: Canada
Posts: 194
10 yr Member
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Quote:
Originally Posted by Quandry View Post
Fortunatos, I know you are well meaning, but I have been going through all this for about eleven years now. When I took Prednisone, I had suffered from prednisone psychosis. When I took Cymbalta, I bled profusely from my rectum. I'm not asking the doctor to hurry up and fix me. It's been all these years. The reason I don't take Imuran is because both my father and grandfather died of Leukemia, My Grandmother died of colon cancer, my mom had uteran cancer, my daughter had cancer of the cervix. My sister and aunt had breast cancer, and the list goes on... I've been as patient as anyone can expect, but it's been eleven years. How much more patient should I be?

The only reason I told the Neurologist about the jalapenos is because he asked me how I treated my Trigeminal Neuralgia. I didn't think I should lie about what I do. Here are some sites showing how capsaicin works, and by the way, capsaicin comes from hot peppers. http://www.ncbi.nlm.nih.gov/pubmed/1539818 http://www.webmd.com/pain-management...topic-overview http://www.researchgate.net/publicat...inal_neuralgia

I'm not some idiot who spouts out some concoction or old remedy without researching first. I would expect a neurologist who treats Trigeminal Neuralgia to know a bit more about how to relieve the pain.

I'm not saying I know more than the doctors, but I've had a lot of time to do my own research. My thoughts should not be discounted because I'm not a doctor and I shouldn't be told that I can't investigate on my own. That's like giving a doctor the right to be God. If I find something that works, I want to stick to it and I don't want to be on a million pills that cause more problems than necessary.

Are you saying we should be ignorant and allow doctors to kill us more quickly by not questioning them? In my mind, if a doctor doesn't want to be questioned, than he is arrogant. How can I trust someone who is so arrogant that while I was still talking he starting dictating over my voice and dismissed me as his nurses escorted me out of the room. He was obviously finished talking to me because I challenged him because I wanted answers. He wasn't going to investigate any further and was about to dismiss me permanently. That's when he said he'd send me to the Mayo clinic. I have to fight to get answers because if I don't stay on the pyridostigmine I may stop breathing all together.
Thank you, Quandry. I do care about you, and keep in mind that I am a patient as well. I have encountered a few bumps in my journey. For what it's worth, I kicked a neuro out of my hospital room, and told him not to come back.

Another question, if you're willing.

"...How can I trust someone who is so arrogant that while I was still talking he starting dictating over my voice and dismissed me as his nurses escorted me out of the room. He was obviously finished talking to me because I challenged him because I wanted answers. He wasn't going to investigate any further and was about to dismiss me permanently..."

Have you ever had someone accompany you to an appointment with this doctor?
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