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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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08-01-2013, 05:40 PM | #21 | |||
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160 mg of prednisone? Wow, that seems like a lot.
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Celeste |
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08-01-2013, 05:51 PM | #22 | ||
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160? That is super duper high. I don't know how you ever sleep---as in EVER! Does your MD have a plan for reducing your dosage? If not, you are at extreme risk for developing some major side effects in a short amount of time.
Take care of yourself! |
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08-01-2013, 06:23 PM | #23 | ||
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I have no problem sleeping lol never have I have sleep apnea I use a cpap I'm getting gastric bypass in a few months hoping all my health issues will be cleared up by then I need to up my dose again my prescription says up to 9 pills a day all the symptoms are bearable the reflux the increased sex drive the moods lol I feel like myself again I'm hoping to only be on prednisone for a few months
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08-01-2013, 06:43 PM | #24 | ||
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Incredible. I thought my body "liked" pred, but you have me beat.
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08-01-2013, 11:18 PM | #25 | |||
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Prednisone made me feel great too, until they start to wean you off. Then all the MG and fatigue comes back. This is the second time they tried to wean me off. I am now taking 30 mg every other day. It will take 3 months to wean me off. It only took 4 days for all the fatigue to come back. They are going to put me on cellcept in a month. Unfortunately it can take up to 18 month for the cellcept to take effect. It is going to be a rough year.
I am going to try to talk them in to Imuran which will help the Crohn too instead of cellcept. kathie |
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