Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-21-2013, 11:09 AM #1
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
strizzlow20 strizzlow20 is offline
Member
 
Join Date: Jan 2009
Posts: 140
15 yr Member
Default Follow Up- Not Doing Well

So, I am a few weeks in to my treatment and not much luck. 20 mg of Predisone and 30 mg of Mestinon twice a day. I follow up with the neuro in a couple of weeks but I feel like crap. I think I might be going through a relapse of some kind. Not only is my vision still a problem, but my balance is off and my muscles are weak. My neck muscles are weak and I have to force my head from leaning to the right at times. This is causing neck pain. My legs tremble when I strain them, and relaxing them ease the stress. I have another MRI Monday for them to check some things out. I told the Nurse Practitioner that I didn't think my visual symptoms added up to MG so she wants me to meet with the doctor. I am going to ask for a Tensilon test at the Mayo Clinic to see if it temporary relieves the eye issues to give us some direction and to convince me its MG. I don't want to be on steroids if it's not because of the MG. I think I am past the terrified stage and I'm just at the point of coping with all of this the best I can. On top of these issues, I feel like my concentration and my short term memory is poor. Just turned 27 two days ago and I feel like I'm 60 lol.
strizzlow20 is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Should I follow up? Birdmom Traumatic Brain Injury and Post Concussion Syndrome 3 07-22-2010 12:28 AM
Neuro follow up. dmplaura Multiple Sclerosis 9 07-25-2009 08:22 PM
RSD and teeth Follow Up kilikina Reflex Sympathetic Dystrophy (RSD and CRPS) 4 06-25-2009 12:21 PM
Follow up angiogram.. BAlive Aneurysm 3 01-30-2009 01:14 PM


All times are GMT -5. The time now is 12:50 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.