I am having some serious side-effects to my first IVIG. Besides the excruciating migraine. After the 5 days of IVIG, I experience extreme weakness, not just muscle weakness, weakness to my very core. I could hardly think. I also experience vertigo, and blood pulsating sound in my ear, skin on extremeities became mottled and I have brown urine. I called the neuro, he is on vacation and talked to the attending of the backup neuro. He ordered a bunch of blood test. All my blood work is off. Here they are:
creatine kinase low 23 normal range 38-234
RDW high, Hematocrit low, MCHC borderline high
WBC high 18.3 (normal 4-11), Neutrophils high 82% (45-75%), 15 tho/ul (normal 2-7.5)
Lymphocytes low 13% (normal 20-47%)
AST high 52 (NORMAL 15-42)
ALT high 56 (normal 14-54)
Bilirubin high 1.4 (normal 0.3-1.2)
Albumin low 3.2 (normal 3.5-4.8)

Neuro is too far away, so he sent me to my GP for an antibiotic - AUgmentin, in case the WBC elevation is an infection from high dose steriods. He reordered blood test and a bunch of new ones for Friday and an ultrasound of the upper abdomen. He also increased my pregnisone back up to 30 and told me to stop taking cholesterol meds.

At the GP my blood pressure was 130/98, pulse 100, respiration 70, oxygen 92 and I had a low grade fever.

Thyroid scan came back with nodules and notable lymph nodes.

Has anybody experience anything like this. I tried to look these up on line and saw a common trend of hemolytic anemia, connective tissue disorder and rhabdomyolysis-severe muscle breakdown.

This disease just keep getting worse. The treatments are worse than the disease.

kathie