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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Senior Member
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As my husband was helping me at my daughter's graduation yesterday, people were concerned. I think they thought I was fainting (it was very hot), so they wanted to bring me a chair, a glass of water, etc. We were just trying to get to the car, and I tend to go limp, so I'm a sight. What's the best simple explanation to people in passing? I usually say things like, "I have a muscle disorder." If the person stops to talk, or if it's someone I know, I might say, "I have a neuromuscular disease, myasthenia gravis. It's sort of like MS." Yesterday at one point I heard myself say, "Oh no, I'm fine, I'm always like this," which was probably not the best choice.
![]() What's your favorite very brief explanation? Abby |
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"Thanks for this!" says: | Fortunatos (06-02-2013), Tracy9 (06-22-2013) |
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