FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
07-01-2013, 08:22 AM | #11 | ||
|
|||
Member
|
Quote:
|
||
Reply With Quote |
07-01-2013, 05:32 PM | #12 | ||
|
|||
Senior Member
|
Huperzine is available without a prescription, and I have heard that it works like Mestinon. I don't know much about it, but it might be worth researching.
Abby |
||
Reply With Quote |
07-01-2013, 05:54 PM | #13 | |||
|
||||
Member
|
That might be something that would be easy to import. It seems like it would be worth a try. Thanks for the info Abby. It is something that we could all keep in our minds as a "plan B" if something goes wrong with our availability of medicine and it might be just what Shazia needs if she can't get the mestinon.
Huperzine
__________________
Celeste |
|||
Reply With Quote |
07-02-2013, 08:55 PM | #14 | ||
|
|||
Junior Member
|
Good luck to you Shazia. For me, mestinon makes my symptoms disappear. I am lucky and gr8ful that it works since I know it doesn't help everyone.
Now I'l ask a really naive question: I believe you Shazia, but it makes no sense that a drug like mestinon (with zero abuse potential) could be prohibited for those who need it. Is this a matter of high cost, or is there really no way for a person with MG to find this drug in your country? I don't mean to get political but rather am at a loss for what I would do if I couldn't get this drug. Is this a common situation across the world? |
||
Reply With Quote |
07-11-2013, 06:54 AM | #15 | ||
|
|||
Junior Member
|
Shazia, I kept thinking about your need for medical assistance for MG in Saudi Arabia. I wanted to mention another set of possible resources. It appears there are several NGO groups operating in Saudi Arabia that provide medical services. You may be able to receive some real help. One example is the Saudi Red Crescent organization. Another is the International Islamic Relief Organization. These groups often focus on disaster relief, but they also offer direct medical treatment.
Secondly, you might get some good advise from the Doctors Without Borders. I think they are quite creative. Lastly, there seem to be several groups that provide remote medical assessment and care. Some seem to be 'for profit' corporations and may be expensive. Some seem to be non profit organizations that provide no or low cost services. It looks like you communicate with your doctor via the internet, create a treatment plan (local or with travel) and then carry out the plan. One group is here: http://www.internationalmedicaltreatment.com/ Here is another that is non-profit: http://www.imva.org/ The 2nd group pairs their doctor with your doctor and tries to provide the right resources for your doctor to help you wherever you live. There seem to be many groups that seek to help people in need. Perhaps you can find a local resource via word of mouth or internet? If you need help locating the right group for you, please let me know and I'll try to help. Good luck to you Shazia. We all need that every day. |
||
Reply With Quote |
"Thanks for this!" says: | cait24 (07-11-2013) |
Reply |
|
|