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Old 07-02-2013, 04:01 PM #1
crayolagal crayolagal is offline
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Join Date: May 2013
Location: Chicago
Posts: 6
10 yr Member
crayolagal crayolagal is offline
Junior Member
 
Join Date: May 2013
Location: Chicago
Posts: 6
10 yr Member
Default Thymectomy

Greetings all...

I was recently diagnosed (June 2013) with a positive antibody test and SFEMG. My first symptoms were a droopy eyelid and double-vision (May 2013). My current MG symptoms are ptosis, double-vision, face droop, some fatigue, and little swallowing issues. I'm taking daily Mestinon (60mg x 3) and Prednisone(10mg dose) and feeling fine for the most part.

I know that I am very fortunate to have been able to get diagnosed and tested this quickly. I've been seeing an Neurologist who has a specialty in MG and he fits me in to the MDA clinic for appointments. I just turned 41 and he recommends a Thymectomy (VATS method). My thymus is "normal" - no thymoma present in the CT but both he and the Thoracic Surgeon (who I saw today) recommend the procedure.

This is just moving so quickly and it is freaking me out They want to get me prepped for surgery with plasmapheresis or IVIg shortly after my family vacation in August.
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