Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-17-2013, 08:08 AM #9
Mastas Mastas is offline
Junior Member
 
Join Date: Apr 2013
Location: Orlando, FL
Posts: 42
10 yr Member
Mastas Mastas is offline
Junior Member
 
Join Date: Apr 2013
Location: Orlando, FL
Posts: 42
10 yr Member
Default

Quote:
Originally Posted by strizzlow20 View Post
Spoke to the neuro today. He is sending to the Mayo Clinic. I will be making arrangements to see them see after I fork out 500 for a past bill that I owe. I am also going to Shands Medical Center at the University of Florida next Friday for them to look into balance and vision issues. These are my last steps. 2nd sets of MRI came back fine with no lesions or tumors. Doctor still thinks the eye issues are from MG but some of the sensory issues such as tingling aren't consistent with MG. I have no idea of what kinds of test I will go through, I just hope they're thorough. He is also going to have them look into LYME since my other eye issues started when I was 17 in New England. I have floaters, palinopsia, and some phenomenon where you see bright sparks darting in your vision when you look at something like the sky. There's a name for it I just can't remember. Anyways, I don't know. I think after this there's not much to do but to try to plug away. Doctor was ok with me with tapering off of Prednisone since it may skew some of the tests they will do. It's really hard and depressing sometimes.

Are you in Florida? I live in Orlando and see a dr in St Pete that is well versed in MG. ALAN Weiss
Cellcept has helped my double vision.... So sorry for your frustration
Mastas is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
OK, now can I give up? SDFencer Depression 9 11-11-2012 08:12 AM
If I could I would just give up.... Jim091866 Parkinson's Disease 6 03-21-2012 09:24 PM
I give, they win...... mbrook Traumatic Brain Injury and Post Concussion Syndrome 5 10-01-2010 07:41 PM
OMG really give up now. Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 3 08-15-2008 01:57 PM
I give up Iffynah Reflex Sympathetic Dystrophy (RSD and CRPS) 5 08-08-2008 12:21 PM


All times are GMT -5. The time now is 09:37 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.