Hi I'm brand new here, so happy to have found all of you. I was just diagnosed after years and years of ER trips in crisis, not one doctor ever knew what was happening to me, finally found a doc this year that figured it out (after 15 minutes of being with me, how is that possible? years of doctors and he knew it right away), so happy to have relief in that way. I know many of you went through the same thing. It has been a horrifying nightmare, I was sent home from ERs in full crisis, weird to say that the mg diag. is like daylight after a long long long night.

I have had so many bad reactions to medications that I'm scared to try the mestinon, I know it makes no sense at all. I guess I need some support to just do it, I think I'll try 1/2 or 1/4 pill? I had such a freaky withdrawal to the tensilon during my diagnosis that I'm just scared. I have two young kids also, I don't want to have a bad reaction and end up in the hospital again. But I know I need this med. I think all of my experiences with hospitals and doctors has made me so scared to take anything. Has anyone here had a bad reaction, like an allergy? I know I'm emotional, just being diagnosed, so many things to learn, I just wish I wasn't so scared. Thank you, I appreciate your time.