FAQ/Help |
Calendar |
Search |
Today's Posts |
|
Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
Reply |
|
Thread Tools | Display Modes |
07-30-2013, 04:17 PM | #11 | |||
|
||||
Member
|
Quote:
kathie |
|||
Reply With Quote |
"Thanks for this!" says: | bny806 (08-01-2013) |
08-01-2013, 11:28 AM | #12 | ||
|
|||
Junior Member
|
Thank you all for your replies! I know it must be hard to tell from a photo when you have never seen me before but thank you all for taking the time to reply and comment. As I said to Anacrusis, its a bit like going to the dentist - people might not necessarily notice or think it looks bad but when you can feel your mouth not moving as it should or your eye drooping it feels so much worse than maybe it looks?! You are so right Brooketrout - it does make me self-conscious and I feel like people are staring or just looking at my mouth when I try to talk and only one side moves! I then feel sorry for them as they don't know where to look!! Unfortunately, I have no medication so I look like this (to one degree or another) everyday
Thank you Kathie, bny806 and suev for the comments about tongue scalloping - over the years I have notice furrows/scalloping down the edges of my tongue....I thought maybe my tongue was swelling periodically for some reason or maybe just too big for my mouth!! haha. So your comments are really interesting, thank you all! Gr8ful - thank you for your link - that is very interesting given that I have twice been told symptoms should affect both sides and not just one. Surely if one sided is possible for eye symptoms it is completely possible for any symptom to be one sided?! Matilda - it baffles me WHY anyone would want to fake ptosis! What is wrong with these Dr's??? And, like you said, if you try to fake it - it is virtually impossible to recreated the symptoms exactly as you describe. I am pleased your medication is working and hope you continue to improve and you finally get the diagnosis and answers you need Thanks again everyone |
||
Reply With Quote |
08-01-2013, 04:08 PM | #13 | ||
|
|||
Member
|
Quote:
Today I went to my own doctor (after 6 months of feeling very little weakness at all) about an issue unrelated to MG. Well, inspired by you I also took along a photo of my own milder ptosis and other evidence of rapidly deteriorating weakness after heat exposure on holiday. The doctor thought the symptoms I had were serious, and when I took my own picture my ptotic eye actually felt better than it looked. I hope you do get your diagnosis and the best treatment soon Anacrusis |
||
Reply With Quote |
08-01-2013, 04:57 PM | #14 | |||
|
||||
Member
|
I don't know how you can fake ptosis. It would be hard to do.
__________________
Celeste |
|||
Reply With Quote |
"Thanks for this!" says: | Unsure81 (08-02-2013) |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
MRI photos | Multiple Sclerosis | |||
Some photos... | Creative Corner | |||
Fantastic Photos | Survivors of Suicide | |||
Some photos | Survivors of Suicide | |||
Baby Photos And 18 Year Old Photos Of You Know Who :) | Children's Health |