Originally Posted by Brooketrout

So I have been on the Pyridostigmine and at first it was dramatically improving my eye, but I guess now my body has grown immune to it because it no longer helps. This is a common problem for me with other medications, so I can't say I'm surprised. I was taking 60mg but only half in the morning and half at night. When it stopped working I decided to up the does to one whole tablet of 60mg in the morning and one whole tablet at night, but so far it hasn't helped. I'm pretty disappointed Now I'm back to looking weird again and it's hard to accept that this may be my new reality.

ORIGINAL POST:
Hi Everyone,

After having an MRI, 2 CT's, and numerous blood tests, I still do not have any concrete answers. Although I have tested negative for MG, my neurologist said that my droopy eye is the very first symptom of MG so she has put me on Pyridostigmine which I am starting today. She wants me to take this medication for 2 weeks to see if my eye improves. She feels that it is still possible that I may have MG, but still tested negative because I am in the early stages. To me, it feels like they are grasping at straws. Has anyone else tested negative and then it turned out they had it, or gone through a similar situation?

Originally Posted by Jerry M

I have tested negative in every test except the electro muscle stim. My neuro declares my dx based on clinical symptoms. In my darkest hours I wonder if it's really something else, but normally, I'm still trying to get used to a chronic disease. (Dx 3 months ago)

Originally Posted by davew41

Well I'm back on the ivig every 2 weeks
Neuro appt next week to
Talk About what to try next
It is getting to the point
I can barely walk 8 to 15
Feet without needing a rest
Getting really sick of nothing
Working

Originally Posted by cait24

Dave, mestinon only works for 3-4 hours. Did you feel any effect of it wearing off before the next dose? I can feel it wearing off at about 3 to 3.5 hours. Every six hours seems like a large span of time.

Mestinon only temporarily relieves symptoms. It does not make you feel like you did before you had MG. For me, it improves my symptoms by about 20%. I take it a half hour before meals to prevent choking. If I missed a dose, I would not be able to do activities like grocery shopping. Did you see any improvement in stamina? It is not going to be a drastic improvement. But I will take every bit I can get.

thanks
kathie

Originally Posted by Brooketrout

So I have been on the Pyridostigmine and at first it was dramatically improving my eye, but I guess now my body has grown immune to it because it no longer helps. This is a common problem for me with other medications, so I can't say I'm surprised. I was taking 60mg but only half in the morning and half at night. When it stopped working I decided to up the does to one whole tablet of 60mg in the morning and one whole tablet at night, but so far it hasn't helped. I'm pretty disappointed Now I'm back to looking weird again and it's hard to accept that this may be my new reality.

ORIGINAL POST:
Hi Everyone,

After having an MRI, 2 CT's, and numerous blood tests, I still do not have any concrete answers. Although I have tested negative for MG, my neurologist said that my droopy eye is the very first symptom of MG so she has put me on Pyridostigmine which I am starting today. She wants me to take this medication for 2 weeks to see if my eye improves. She feels that it is still possible that I may have MG, but still tested negative because I am in the early stages. To me, it feels like they are grasping at straws. Has anyone else tested negative and then it turned out they had it, or gone through a similar situation?