Hi everyone!

My name is Karen and I am 35yrs in Tampa, FL. My neurologist and neuro-opthamologist both think I have MG as I have had issues with ptosis (in the morning when I wake up usually- which is odd & neuro says atypical presentation), double vision, a lot of weakness that has gotten worse and even days when pushing a gas pedal is too much. Recently also occasional slurred speech. I've had on and off issues with swallowing for a while- but I also have a dx of Ehlers Danlos Syndrome and there are a lot of overlap symptoms with MG so hard to tell what is what.

My antibody test came back negative. Neuro has ordered CT with contrast of my chest, and an EMG. While we are waiting on those (CT sept, EMG in Oct but on waiting list for earlier) she wrote me a script for Pyridostigm 60mg. She wanted me to start taking 1/2 tab 3x per day- partially as I only weigh 90lbs. First dose on Sat afternoon, I noticed myself feeling a little more clear headed. Also managed to clean the refrigerator (with help of BF)- and not just wipe it down, like everything out and SCRUB it! (btw, it is awesome, it looks new. I smile every time I open it!) After, I crashed. Dose later didn't seem to do anything. Sunday managed to run some errands- but then again later crashed. It seems like when I take it, it helps for a couple hours- but then after I feel worse. I skipped the 3rd dose last night and slept fine. Woke up usual tired but nothing worse. I haven't noticed any side-effects, diarrhea etc.

I have a call in to neuro to ask about dosage/scheduling when I take them. But- that return call can take a while!

Do you think taking 60mg will help not crash after? She had said after a few days of 30mg I can up it to 60mg- but I still feel weird taking a med for a dx I don't actually have yet. And worried the crash after 60mg will be worse. Or is the 30mg making me feel better and then I am not pacing myself as well and that is causing the crash?

Any ideas on why I'm having highs/lows or is it how I pace myself or dosage or whatever you got... thanks in advance!