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Old 09-03-2013, 01:55 PM   #1
Unsure81
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Blush Strange Question!!

Hi everyone - I have been wanting to ask this for a while, but even now I am at a loss as to how to accurately describe it all (!) but I am finally going to try! So brace yourselves because even I think this sounds a little crazy and maybe Neuro #1 was right after all! lol!!

I have a problem with my eyes/vision where I feel as though I can't see properly - like I'm straining and not seeing things properly and have to really try to focus even though nothing really seems to be wrong with my vision? (See what I mean? Odd!) I do have blurring vision (predominantly in my right eye) which gets worse as the day progresses and things get blurry and fuzzy during the evening but there are times where I get this sensation and my vision seems relatively clear?? I do have focal migraines (with wavy, flashing lights) very occasionally but this doesn't really fit with those and to be honest - I have put this down to anxiety for years now?!

I do get what I think are tension type headaches which I put down to my eyes struggling later in the day and my neck struggling as my head gets heavier!! If I take the weight off my neck and lie down it usually resolves the headache pretty quickly!! I do have mild drooping of my eyelids, again predominantly the right but nothing as dramatic as some of you have to deal with.

To add to this, if I am reading or scanning a room etc - anything that involves a sweeping side to side movement of my eyes I can get a little head spin as if everything is trying to catch up with itself! This is usually if I have been doing a lot of reading/computer work or I'm tired.

Can anyone shed any light on this or does anyone have anything similar??

Thanks everyone...I really don't mind if you just want to take a vote on whether I can add this to the crazy list or not! lol!!

Eve.x
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Old 09-03-2013, 05:17 PM   #2
joefnh
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Eve I'm going to answer this question here on this site as well as a benefit to this group

Your not crazy at all....most of what has been said here I have experienced especially the crazy vision and the rapid change in my glasses prescription.

As Bweeds pointed out small changes in our eye muscles results in a change in tracking of our eyes, that can drive us nuts.

We have to think about our 2 separate eyes as 2 separate cameras that need to be pointing at the same exact point to get the same image, otherwise our poor brains have a tough time sorting out what we are seeing. If the 2 images do not line up, this results in not only fuzziness but strange shifts in shapes for some people as our brains try to process this.

This is made even worse if the condition is changing. Our brains can adapt some level of offset as long a it is constant, the problem is MG is never a constant.

It's no wonder so many people with MG have headaches of various types.

Nope your not crazy, actually right on

Joe
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Old 09-03-2013, 05:30 PM   #3
4-eyes
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It sounds like MG vision issues to me. Nothing strange at all.
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Old 09-04-2013, 08:56 PM   #4
bny806
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haha, i just posted a vision question - i hadn't seen this question yet! so no, it doesn't sound crazy at all!! I have the exact same issues.. i've even told my hubby that it's weird that moving my eyes fast (not my head) can almost induce vertigo (very brief, but it's there).. My eyes don't accomodate well (if i stare at something up close or far and then try to focus on something else they don't adjust well).. so strange- but not crazy !: )
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Old 09-05-2013, 11:36 AM   #5
Unsure81
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Default Thank you!!

Quote:
Originally Posted by bny806 View Post
haha, i just posted a vision question - i hadn't seen this question yet! so no, it doesn't sound crazy at all!! I have the exact same issues.. i've even told my hubby that it's weird that moving my eyes fast (not my head) can almost induce vertigo (very brief, but it's there).. My eyes don't accomodate well (if i stare at something up close or far and then try to focus on something else they don't adjust well).. so strange- but not crazy !: )
Haha - to be honest my title didn't really give a good indication of my query....yours does a much better job!

Thank you so much for posting, it is so nice to find someone who has the weird vertigo spin!! When I told Neuro #1 he looked at me very strangely but did order the MRI of my brain to include my inner ear - when that was all clear to "crazy lady" look came back so I just kept it to myself from there!! I also find my eyes have a problem adjusting from near to far and if I try to strain to either side or up/down my eyes take a few seconds to readjust after and feel like they are going to go into double vision!!

Thank you again for reassuring me!!x
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Old 09-07-2013, 04:26 PM   #6
strizzlow20
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Just curious, do you have this problem even if you close one eye? Do you still have some shifting or focusing issues with only one eye open instead of two?


Quote:
Originally Posted by Unsure81 View Post
Haha - to be honest my title didn't really give a good indication of my query....yours does a much better job!

Thank you so much for posting, it is so nice to find someone who has the weird vertigo spin!! When I told Neuro #1 he looked at me very strangely but did order the MRI of my brain to include my inner ear - when that was all clear to "crazy lady" look came back so I just kept it to myself from there!! I also find my eyes have a problem adjusting from near to far and if I try to strain to either side or up/down my eyes take a few seconds to readjust after and feel like they are going to go into double vision!!

Thank you again for reassuring me!!x
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Old 09-07-2013, 04:45 PM   #7
strizzlow20
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Just to add, I shared the link below with one of our peers on here. This is what my vision has been like since April, but more subtle, but constantly shifting and moving:

http://www.migraine-aura.org/content.../index_en.html


I just wanted to actually show you guys what my vision problems have been like. I hope your eyes do better soon


Quote:
Originally Posted by Unsure81 View Post
Hi everyone - I have been wanting to ask this for a while, but even now I am at a loss as to how to accurately describe it all (!) but I am finally going to try! So brace yourselves because even I think this sounds a little crazy and maybe Neuro #1 was right after all! lol!!

I have a problem with my eyes/vision where I feel as though I can't see properly - like I'm straining and not seeing things properly and have to really try to focus even though nothing really seems to be wrong with my vision? (See what I mean? Odd!) I do have blurring vision (predominantly in my right eye) which gets worse as the day progresses and things get blurry and fuzzy during the evening but there are times where I get this sensation and my vision seems relatively clear?? I do have focal migraines (with wavy, flashing lights) very occasionally but this doesn't really fit with those and to be honest - I have put this down to anxiety for years now?!

I do get what I think are tension type headaches which I put down to my eyes struggling later in the day and my neck struggling as my head gets heavier!! If I take the weight off my neck and lie down it usually resolves the headache pretty quickly!! I do have mild drooping of my eyelids, again predominantly the right but nothing as dramatic as some of you have to deal with.

To add to this, if I am reading or scanning a room etc - anything that involves a sweeping side to side movement of my eyes I can get a little head spin as if everything is trying to catch up with itself! This is usually if I have been doing a lot of reading/computer work or I'm tired.

Can anyone shed any light on this or does anyone have anything similar??

Thanks everyone...I really don't mind if you just want to take a vote on whether I can add this to the crazy list or not! lol!!

Eve.x
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Old 09-09-2013, 07:14 AM   #8
Unsure81
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Hi Strizzlow - to be honest I feel it is the same strained feeling like I can't see if I cover one eye....but I looking at your example I do kinda get where your coming from. I feel my vision looks patchy but if I look at the patchy area it is ok?? Is this making any sense!! haha. so maybe it is a form of the shifting you describe?? How are you getting on with finding your answers???

With the blurring and even more bizarrely if I look through a crack in my fingers my blurred vision resolves itself...strange??

Eve.x
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Old 09-09-2013, 06:58 PM   #9
gr8ful
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My mostly ocular MG has been acting up lately and my vision is unstable. It isn't so bad in the morning except it takes a few minutes for me to get my eyes working well when I wake.

My neuro said the focusing muscles in eyes aren't voluntary and shouldn't be affected by MG but I think I disagree and will discuss again sometime. I have several different vision issues: typical double vision, problems changing from far to near vision and also a bit of double vision even with one eye closed.

The typical double vision is easy to understand. My right and left eyes are pointing in two different directions because the muscles are weak and don't do a good job controlling where my brain tells them to point. Not fun.

The problem changing from far to near seems to be caused by bad eye pointing also. I can have good vision seeing near and double vision seeing far. Its like I get stuck seeing near and can't adjust to seeing far. Closing one eye makes it go away.

I also can have double vision with one eye closed but it's almost like a halo around an object and not as severe as the typical double vision. I think this is a combination of weak eye focusing muscles, being farsighted and ptosis. Say I am trying to see close up but my eye can't adjust and is focused far away. A little change in the position of my eye lid will cause the scene to look more or less blurry and yet I can't control my eyelid position and it changes. This is like stopping down a camera lens that is not in good focus (an 'old school camera'). When an out of focus camera lens is set wide open, the picture is blurry. If the lens is stopped down the picture sharpens. If your eyelid is changing position it's like changing the F number on a camera. Holding my eyelid open causes the vision to stabilize but be blurry. Looking through a little crack in your fingertips is like stopping down a camera and causes the view to sharpen. I'm not sure I said that right, but I hope you get my meaning.

Fortunately, mestinon helps clear my vision pretty well. It's not perfect but I am gr8ful it helps as much as it does.

To Strizzlow: Is it possible your vision could stabilize if you deliberately held your eyelid open wide? I'm not sure if you have ptosis but if you do, seeing what happens with your eyelid wide open might be a useful way to pin down the cause of your wavy vision. Just a thought.
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Old 09-10-2013, 06:20 AM   #10
strizzlow20
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Sorry for the delay. To answer your questions, my sight does not improve if I hold open an eyelid or close one eye. If you look between your fingers and your vision improves, that may mean it's a refractive error, such as an astigmatism from what I have been told. Getting answer have been tough for me. Mayo Clinic, University of Florida, Retina Specialist, and 2 Neuro Opthalmologists aren't sure. BUT, I followed up with the doctor that did a VENG on me back in June. I really wish I saw this doctor a long time ago. I was referred to him from my local doctor JUST for the test. This is where they put IR goggles on and move you around and have you track LED lights to look at your eye movements. Yesterday he looked at me and said my exam was not normal. I told him it wasn't the Benign Positional Vertigo that was outlined in his impression. He said that was his impression because of me being referred there for imbalance, but said my eyes are NOT FUNCTIONING properly for my age and that's why he reccommend for me to get an MRI. He said at 40 degrees, my eyes are not very stable. He also said he noticed saccades in my right eye which means my right eye is having trouble tracking objects properly. If I would have seen this guy months ago, I would have saved a lot of time. It blows my mind that the other eye doctors said nothing was wrong and this guy has video evidence that proves otherwise. Now as find as understanding the cause, that's tricky. My neuro thinks it's MG, while the people at Mayo don't think so, but they also said nothing was wrong with my eyes which they're obviously wrong about that. Bascom and Palmer in Miami is the number one eye hospital in the US. I am going there next week. I will bring a couple of the report from this doctor and I am requesting a CD copy to show them the abnormalities. Personally, I think it's a combination of MG/Peristent Migraine Aura without Infraction. I have absolutely 0 nystagmus but I have oscillopsia/distortion. It could just be MG, maybe this is a snowflake type symptom and I am having isolated weakness in my eyes. My eyelids were also video taped as drooping at high degrees which suggested weakness. He outlined that in his report

Quote:
Originally Posted by gr8ful View Post
My mostly ocular MG has been acting up lately and my vision is unstable. It isn't so bad in the morning except it takes a few minutes for me to get my eyes working well when I wake.

My neuro said the focusing muscles in eyes aren't voluntary and shouldn't be affected by MG but I think I disagree and will discuss again sometime. I have several different vision issues: typical double vision, problems changing from far to near vision and also a bit of double vision even with one eye closed.

The typical double vision is easy to understand. My right and left eyes are pointing in two different directions because the muscles are weak and don't do a good job controlling where my brain tells them to point. Not fun.

The problem changing from far to near seems to be caused by bad eye pointing also. I can have good vision seeing near and double vision seeing far. Its like I get stuck seeing near and can't adjust to seeing far. Closing one eye makes it go away.

I also can have double vision with one eye closed but it's almost like a halo around an object and not as severe as the typical double vision. I think this is a combination of weak eye focusing muscles, being farsighted and ptosis. Say I am trying to see close up but my eye can't adjust and is focused far away. A little change in the position of my eye lid will cause the scene to look more or less blurry and yet I can't control my eyelid position and it changes. This is like stopping down a camera lens that is not in good focus (an 'old school camera'). When an out of focus camera lens is set wide open, the picture is blurry. If the lens is stopped down the picture sharpens. If your eyelid is changing position it's like changing the F number on a camera. Holding my eyelid open causes the vision to stabilize but be blurry. Looking through a little crack in your fingertips is like stopping down a camera and causes the view to sharpen. I'm not sure I said that right, but I hope you get my meaning.

Fortunately, mestinon helps clear my vision pretty well. It's not perfect but I am gr8ful it helps as much as it does.

To Strizzlow: Is it possible your vision could stabilize if you deliberately held your eyelid open wide? I'm not sure if you have ptosis but if you do, seeing what happens with your eyelid wide open might be a useful way to pin down the cause of your wavy vision. Just a thought.
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