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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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#1 | ||
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Member
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Does anyone else have this problem? Ever since this thing hit my body I noticed that if I focus on something up close and then try to look at something a different distance away it takes a while for my eyes to accomodate and focus on that next distance..
I am having a major GI flare (I probably have crohns like my sibling who has it really badly).. and my IVIG is starting to wear off.. so my throat, droopy face and all aren't too happy.. but my vision is worse than it ever has been... i always work on my laptop while watching tv.. and tonight i'm having a hard time focusing on one then the other without issues.. curious if i'm alone with this> Hope everyone is doing well (i went 5 days past my 3 week IVIG schedule a few weeks ago and will NEVER do that again)!! |
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#2 | ||
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Junior Member
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I have all sorts of focusing troubles. I talked to my neuro about it and was told that the focusing muscles in your eyes aren't of the 'voluntary' type and so they aren't affected by MG. Meanwhile, seeing clearly is becoming more difficult. I'd like to hear more on this topic.
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"Thanks for this!" says: | bny806 (09-05-2013) |
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#3 | ||
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Member
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The eye muscles are slow to adapt to the head position change and take a few seconds to adjust. It's a normal part of MG and indicates that your eye muscles are weaker. In my case, that was one of my first MG symptoms.
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"Thanks for this!" says: | bny806 (09-05-2013) |
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#4 | |||
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Member
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I definitely have varying degrees of focusing ability depending on how weak I am at the moment. I also noticed one day when I came outside from having plasmapheresis and was feeling quite good, that my vision was super clear, as if I had put on the perfect pair of glasses. When I was in an exacerbation back in January, I could not see words on the TV, they were so blurry.
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"Thanks for this!" says: | bny806 (09-05-2013) |
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#5 | ||
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Member
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thanks yall! it's so strange.... tonight i'm much better.. but it was pretty bad yesterday.. hopefully once this summer heat resolves and I get IVIG next week I'll be better.. I just never know what's going to happen next, or how my body will be from day to day!
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