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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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09-09-2013, 07:06 AM | #1 | ||
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Junior Member
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Hi everyone - just a quick question....I just wondered if any of you know of, or have experience of, pain with Thymoma??
I have been told I have Costochondritis (inflammation of the chest wall) which is causing me a very tender pain in the sternum area/between my breasts - which started around the time that my symptoms flared up again 7 months ago and also does strangely seem to fluctuate with my good and bad weeks?? When I researched I was interested to see that there does seem to be some loose link between Costochondritis and Thymoma....and as I am waiting for nerve/muscle tests to see if I really do have MG it seemed very coincidental. I will say that I had a chest x-ray in March (and on a painful day for my chest!) which was clear so I am reassured by that but I was just interested to hear you thoughts and experiences?? Many thanks Eve.x |
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09-19-2013, 11:59 PM | #2 | ||
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Junior Member
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No pain here with thymoma. At least not until after the surgery! I'm doing well now and have had follow up CT scans with negative results.
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"Thanks for this!" says: | Unsure81 (09-25-2013) |
09-20-2013, 12:56 PM | #3 | ||
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Junior Member
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Unsure, From what I've read the discomfort caused by a thymoma would be due to pressure from a large tumor pressing against heart/lungs etc. If you had a large tumor they would have seen that. Thymomas are rare and can go undetected until they are quite large. That can cause them to be undiagnosed until a late stage malignancy has been reached. It doesn't seem like pain in the front of your chest would be due to a thymoma, especially since you had an xray. Good luck with your diagnosis.
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"Thanks for this!" says: | Unsure81 (09-25-2013) |
12-11-2014, 01:51 PM | #4 | ||
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New Member
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Quote:
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12-12-2014, 01:09 AM | #5 | ||
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Junior Member
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Welcome to the site. Looks as if I responded a year ago, so I'll reply again. Check out http://www.medicinenet.com/script/ma...iclekey=157905. It doesn't answer your question about how long, but there's useful information. Mine was found by a doctor who had the good sense to order a CT scan. I was followed up with additional CT scans and a PET scan.
Do you suspect a thymoma? Jim |
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12-12-2014, 10:24 AM | #6 | ||
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Grand Magnate
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Welcome pkramoski.
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Kitt -------------------------------------------------------------------------------------------------------- "It is what it is." |
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