At first, I would like to thank the opportunity to be in this place.
Myasthenia is a very new thing in my life. When I think about last May, I see that this word was not in my vocabulary then.
One thing that I'm sure helps me a lot is to realize that I'm not the only one discovering every day how much life is a mistery and how much is good to see that we are not alone.
A good and friendly day to everyone.

Thanks bluestone...this is a good place -it can help you through the tough days and we can learn from each other as we go. It seems like just when I think I have this Myasthenia thing figured out it throws me another curve ball and I have to learn about something new. I have finally come to a point where I mostly think, "It is what it is". Each day is a little different, some are more challenging than others - but I am still here and i'm trying to make the most out of every day. It is good to have you here with us.
Gabe

I never thought that I’d ever get a disease like this ,when I was younger I never got sick and then out of the blue my eyes just closed and I was at work so I went to the ER and that was the first time I have ever heard the word myasthenia , and even now sometimes I just think that the doctors gave me the wrong diagnosis sounds dumb I know but at times when I start to feel good then I think that they just made a mistake and at other time when im feeling really bad I think that they made a mistake and I have something worse but what keeps me going is that I know a lot of people who are worse off then I am but I have to say that this place has helped me more than anyone knows , and I hope you get as much out of this wonderful forum as I did ,, I wish everyone better health

Hi, Gabe and Littlewish
I understand what you said, Littlewish, about thinking sometimes that the doctors gave the wrong diagnosis, and one day when you are feeling better you think in one way and the other day, when you are feeling very bad, you think in other way, and time goes by and this disease is always putting a challenge to our lifes.
I hope, Gabe, that one day I can think as you and 'finally come to a point where I mostly think, "It is what it is". '
I'm still in that point where I'm asking for answers that never come and wishing for some kind of peace that, till now, I'm not having.
Thanks for your words.
It's good to talk with you.

Bluestone, I've been dealing with this aggravating disease of ours for over 30 years. I've had to learn to take what it dishes out, to pace myself, to learn my limitations, and to never give in to it. If it won't allow me to do what I want one day, I just put that thing off to another day, and find something else to do. It seems like my slogan has become; "Work a little, rest a little!" At the end of the day I often surprise myself with how much I was able to accomplish.
Hugs,

Hi Lois,
you are right, one of the most important thing with this disease is to accept the limitations and I think this is my main trouble. Myasthenia is a very recent thing in my life and everything changed since it came. I'm having a hard time to deal with the features and flutuations of MG and I'm not finding some support here...
Thanks for your words.
Hugs