Originally Posted by 4-eyes (Post 1016953)

Yes, bright sunlight (or any sunlight) bothers my eyes. I drive with the visors down in my car all the time. It's a common symptom of MG.

Is your neuro testing for MG antibodies? If she is repeating tests that have previously shown a positive result, there is really nothing to wonder about, as once you are positive you have MG, plain and simple (barring a lab error.) If she's trying to gauge the severity of the MG by the antibody level, then that will not get her far as the levels have little to nothing to do with disease severity, especially if you are on meds.

If you are having weakness or fatigue easily in any other body part--difficulty swallowing, smiling or speaking, lifting arms or using legs--then MG has likely generalized. There is no lab test that will tell you that.

I hope the meds start working fast and you can feel better again. MG flare ups are the pits! :(

Originally Posted by ujukmg (Post 1016668)

Thanks Abby I am on Imuran have never heard of Cellcept how is that different from the other three?

Originally Posted by ujukmg (Post 1019321)

Thank you 4-eyes. Quick question, do you stick to any particular diet and if so, are there any foods that you find help atall? I have a high protein diet and try to eat close to taking my meds, small and often all day. How about you? Also had a very stressful nervy day yesterday and seem to be suffering a lot today....:)