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-   -   Flu Shot Reaction = ER (https://www.neurotalk.org/myasthenia-gravis/194520-flu-shot-reaction-er.html)

robocar 10-19-2013 05:45 AM

Quote:

Originally Posted by TreeLover (Post 1022721)
Hi SoftTalker,

Just thought I'd kick in here to say I got *extremely* ill with MG symptoms after receiving travel vaccines two years ago. I do not as yet have an MG diagnosis, but I do have quite a few of the symptoms.

I am wondering about autoimmunity, "leaky gut syndrome," and poor detox pathways with regard to this issue of varying reactions to vaccines.

Have you tried the GAPS diet or another gut healing diet to heal your nutrient absorption challenges? It is challenging, for sure.. I am working on this at present myself, but have difficulty passing up on the short term gain of cookies...

Hope you feel better soon. T


I too received travel vaccines about 35 years ago. Within a month of receiving them I developed MG which progressed to very severe symptoms. Today I still am on immunosuppressants, large doses of Mestinon, pred and IVIG to keep this in check. I do get the inactivated flu shot each year and have never had a bad reaction - neuro feels it's better than getting the flu. Be careful with Vitamin D as was discussed on this thread - if you are prone to hypertension this can raise your BP significantly. We all walk a fine line here in knowing what we can and cannot put into our bodies.

mrsD 10-19-2013 06:02 AM

Quote:

Originally Posted by robocar (Post 1023344)
I too received travel vaccines about 35 years ago. Within a month of receiving them I developed MG which progressed to very severe symptoms. Today I still am on immunosuppressants, large doses of Mestinon, pred and IVIG to keep this in check. I do get the inactivated flu shot each year and have never had a bad reaction - neuro feels it's better than getting the flu. Be careful with Vitamin D as was discussed on this thread - if you are prone to hypertension this can raise your BP significantly. We all walk a fine line here in knowing what we can and cannot put into our bodies.

I have not heard of Vit D causing hypertension. I would like some links where you read this, or learned this, please.

The Mayo clinic site which is a bastion of conservative supplement ideology has an article about the reverse:
Vit D deficiency "may" be connected to hypertension
http://www.mayoclinic.com/health/vit...ciency/AN01925

Vitamin D TOXICITY however, may cause increased calcium levels, and this may result in hypertension in some people.
These levels are far and away higher than amounts suggested here on NT.
http://www.news-medical.net/health/V...-Overdose.aspx
Quote:

All known cases of vitamin D toxicity with hypercalcemia have involved intake of over 1,000 micrograms/day (40,000 IU) if taken in an attempt to increase the levels of vitamin D.
1000IU D3= 25 micrograms
Most NT members I have seen are using up to 5,000IU daily.

anon6618 10-20-2013 08:12 AM

Quote:

Originally Posted by mrsD (Post 1023346)
I have not heard of Vit D causing hypertension. I would like some links where you read this, or learned this, please.

The Mayo clinic site which is a bastion of conservative supplement ideology has an article about the reverse:
Vit D deficiency "may" be connected to hypertension
http://www.mayoclinic.com/health/vit...ciency/AN01925

Vitamin D TOXICITY however, may cause increased calcium levels, and this may result in hypertension in some people.
These levels are far and away higher than amounts suggested here on NT.
http://www.news-medical.net/health/V...-Overdose.aspx


1000IU D3= 25 micrograms
Most NT members I have seen are using up to 5,000IU daily.

I only know that too much Vitamin D can cause kidney or heart problems which can cause hypertension. And the thing you already mentioned; the i creased calcium levels.
But this is only if you take too much.

Anyway, loads of people who take V D have other things that lead to cause hypertension, like taking prednisone or being old.

I take 5 - 15 mcg daily.

Never heard of taking a high but save amount of V D can cause hypertension.

davew41 10-20-2013 08:50 AM

Quote:

Originally Posted by Ravenclaw (Post 1023522)
I only know that too much Vitamin D can cause kidney or heart problems which can cause hypertension. And the thing you already mentioned; the i creased calcium levels.
But this is only if you take too much.

Anyway, loads of people who take V D have other things that lead to cause hypertension, like taking prednisone or being old.

I take 5 - 15 mcg daily.

Never heard of taking a high but save amount of V D can cause hypertension.

Where are you getting your so called facts?
I have been on 6000iu vitamin d3 for over 2 years.
My sons each take 4000iu a day
I get ivig every 2 weeks and for the first bottle
They measure your bp every 15 minutes I have never
Had high bp, actually they tell me it's very nice to see a bp that is normal. Each of us here like to share experiences but please share facts ?
Ps my new vit d3 level was just taken and im at a 57.6
Dr said with lambert eatin they want it at 70 to 90
So I may start upping my vit d3 to 7000iu a day

anon6618 10-20-2013 02:47 PM

Quote:

Originally Posted by davew41 (Post 1023524)
Where are you getting your so called facts?
I have been on 6000iu vitamin d3 for over 2 years.
My sons each take 4000iu a day
I get ivig every 2 weeks and for the first bottle
They measure your bp every 15 minutes I have never
Had high bp, actually they tell me it's very nice to see a bp that is normal. Each of us here like to share experiences but please share facts ?
Ps my new vit d3 level was just taken and im at a 57.6
Dr said with lambert eatin they want it at 70 to 90
So I may start upping my vit d3 to 7000iu a day

I did not say it is a FACT you will get high bloodpressure if you take high amounts of vitamine D. I said it could, not that it always will...
This is what my doc told me.
As in, it is a possibility. It can /may lead to, not it always leads to.
Sorry if I offended you, please continue taking it.
Just shared my experiences.


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