NeuroTalk Support Groups - To IVIG or not to IVIG

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NeuroTalk Support Groups (https://www.neurotalk.org/)

- Myasthenia Gravis (https://www.neurotalk.org/myasthenia-gravis/)

- - To IVIG or not to IVIG - that is the question (https://www.neurotalk.org/myasthenia-gravis/196559-ivig-ivig-question.html)

bny806

11-08-2013 12:29 AM

Good luck next week!!! I can't remember the brand I initially used (I want to say it started with an I).. but I now am on gammunex and have much better luck (no skin rashes, blisters on my hands and less frequent AS - as long as I control the rate)..
I hope it works well and boosts you back up!

Needananswer

11-13-2013 11:19 PM

:wink:Thanks, everyone, for the great feedback. I see the neuro later this wk and will make a firm decision.

cait24

11-13-2013 11:28 PM

I just finished day 3 IVIG with Gammunex and I am feeling wonderful - no side effects at all! I am amazed at the difference, 2 more days to go!!

kathie

Needananswer

11-14-2013 06:16 PM

Quote:

Originally Posted by cait24 (Post 1029082)

I just finished day 3 IVIG with Gammunex and I am feeling wonderful - no side effects at all! I am amazed at the difference, 2 more days to go!!

kathie

Kathie that is such great news! YAY!!! Is it helping your ptosis (assuming you have it?)

bny806

11-14-2013 11:13 PM

Wonderful news!!! So glad your feeling well - isn't it amazing what it can do!??? and great ou haven't had any ill effects from it too! :)

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