I was approved for a 3 month IVIG trial after a great response to a high dose, 6 month course of prednisone (great bc eyes were wide open, had amazing energy and no slurred speech....horrendous in other ways; most notably I got every infection known to mankind so it wasn't sustainable).

Am I crazy to pass on IVIG? I'm gun-shy after pred bc it was truly very difficult and while I know theoretically IVIG is kinder in terms of side effects I've also heard a few horror stories.

The only other option, according to my dr, is methotrexate or imuran.

My main symptom are major ptosis, weakness in facial muscles and crazy, total body, debilitating fatigue (feels like energy has been siphoned out of me).

I do well in the am but afternoon/nighttime it's all over. It's like I'm 2 diff ppl. Seriously, I think my neighbor thinks I'm 2 ppl. as my appearance changes so much w the facial weakness. I look like I'm baked and drugged out. I've read IVIG doesn't help ptosis. Is that true???

Can you tell me if u have done IVIG and which symptom it most helped?

Thank you!!!!