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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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11-13-2013, 12:20 PM | #1 | ||
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Senior Member
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Once I tried to use the poll feature of the forum, and didn't get much of a response, so if it's OK, I'd like to do this more informally. Please respond below and tell us whether you
1. are undiagnosed but suspect you have MG 2. are diagnosed by a blood test that revealed AchR antibodies 3. are diagnosed by a blood test that revealed MuSK antibodies 4. have tested negative for both AchR and MuSK, but got a diagnosis of MG through some other means (tensilon, SFEMG, etc.) 5. have some other myasthenic disease (LEMS, CMS) The reason I ask is that it seems to me that there are way more double-seronegatives (#4 above) here than the stats can account for. On a MG Facebook page, someone asked the question, and the tally so far is 8 AchR; 1 MuSK; and 11 double seronegatives. Abby |
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