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Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS. |
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Junior Member
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Hate to reply to my own post, but seems no one had any answers. We are all differentand people react differently to meds..
I finally started the 3,4 Dap and have noticed a slight increase in my palpitations, but nothing like the mestinon did to me. I also noted more anxiety and have had to take 7 ativans so far as to not go into a panic attack. Also the 3,4 Dap to me is no wonder drug like many here claim BUT I am on a small dose yet they started me as follows week 1 5 mg a day week 2 5 mg twice a day week 3 5 mg three times a day week 4 10 mg in the morning and 5 mg at noon and 5 mg at 6 pm week 5 was supposed to be 10 mg in the morning 10 mg at noon 5 mg evening but i was getting no effect at all. I called and was put on 10 mg ( full pill) every 6 hours during waking time so I take a 10 mg at 6 am 10 mg at noon and 10 mg at 6pm So far the only results i see are a little less dry mouth and that is about it as far as the positives, i get no "tingle" an hour after a pill or anything. I am still very weak and see no strength increase anywhere at all (legs,fingers,hands,arms,etc) I was told if there is no result by Monday to call them and they will double my dosage to 20mg 3 times per day.. |
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"Thanks for this!" says: | Heat Intolerant (12-18-2013) |
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